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Some data cannot be shared due to patient confidentially. In fact, almost all medical trials or epidemiological studies use data that can't be shared outside t
by Dayshine 8y ago
Some data cannot be shared due to patient confidentially.
In fact, almost all medical trials or epidemiological studies use data that can't be shared outside the study.
- marcus_holmes 8y agosurely there are methods of concealing patient identity? We do this with lots of other confidential personal information...
- Dayshine 8y agoBut then the research isn't reproducible...
- stevemadere 8y agoHashing identity solves this. All of the data can be anonymized while retaining the linkage of measurements and procedures performed on the same subject. e.g. We don't know who this guy is, but we do know that every measurement of him was linked to this same enormous random string.
- Dayshine 8y agoOnly if your data is very limited in depth. When doing data linking I can usually identify one person in a dataset of almost 1 million from three innocent seeming pieces of data. Pseudonimisation doesn't really work.