Speaking as an officially-diagnosed zebra (Ehlers-Danlos syndrome), it took a year of doctor searching until I found a specialist who knew what to look for.. an

Speaking as an officially-diagnosed zebra (Ehlers-Danlos syndrome), it took a year of doctor searching until I found a specialist who knew what to look for.. and it started with someone in a powerchair I met at a party remarking that my skin felt velvety like his. Many doctors are bad at conditional probability. [0] 2% of the healthy population is hypermobile, and hEDS is ~1:5000. But P(hEDS|atrophic scars, spontaneous dislocations, 7/9 Beighton score, paralysis attacks) is much higher. There's a weird stigma against zebras seeking diagnoses because you almost have to do your own research to be diagnosed properly. 0. https://opinionator.blogs.nytimes.com/2010/04/25/chances-are/ https://opinionator.blogs.nytimes.com/2010/04/25/chances-are...