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To my knowledge, in California, a genetic sample has to be recovered and stored of every baby born? The archive is run by the state government. So why do they n

by est31 8y ago

To my knowledge, in California, a genetic sample has to be recovered and stored of every baby born? The archive is run by the state government. So why do they not use this registry that they already have full control over, but the data from the DNA company?

cheeseomlit 8y ago
Had to look that up, can't believe it's true. California sounds like a horrifying place to live
paxys 8y ago
It is most definitely easier for the FBI to get data from a private company than from California.
refurb 8y ago
I don’t believe that test does the same level of sequencing that 23andMe does. It basically tests for a few dozen genetic diseases. Diseases where if it’s caught early, the child has a chance at curtailing the negative consequences of the disease (they don’t test for diseases with no treatments).
- est31 8y ago
  Indeed it doesn't do the same level of sequencing. But the specimen is not being thrown away after the test, but kept in an archive. In some states like California you can revoke consent at least. See the list of states with how long they store the specimens here: https://www.cchfreedom.org/files/files/Newborn%20Retention%20All%2050%20States%202018.pdf https://www.cchfreedom.org/files/files/Newborn%20Retention%2... Governments might use this archive to sequence the DNAs down the road and then use it similarly to how they are already using those private services. Prices of sequencing are sinking as we speak.
  - refurb 8y ago
    Fair point about keeping the samples!
jcims 8y ago
I wonder if it's legal to leave the state to deliver your baby for the sole purpose of dodging the collection.
- winston_smith 8y ago
  All 50 states have screening programs, so you'd have to go international. But you can refuse the test, and in fact the Mayo Clinic Labs have a test they can mail to your doctor that you can use instead: https://www.mayocliniclabs.com/test-info/newborn/index.html https://www.mayocliniclabs.com/test-info/newborn/index.html Better plan it in advance though.

by est31 8y ago

cheeseomlit 8y ago

Had to look that up, can't believe it's true. California sounds like a horrifying place to live

paxys 8y ago

It is most definitely easier for the FBI to get data from a private company than from California.

refurb 8y ago

I don’t believe that test does the same level of sequencing that 23andMe does. It basically tests for a few dozen genetic diseases. Diseases where if it’s caught early, the child has a chance at curtailing the negative consequences of the disease (they don’t test for diseases with no treatments).

est31 8y ago
Indeed it doesn't do the same level of sequencing. But the specimen is not being thrown away after the test, but kept in an archive. In some states like California you can revoke consent at least. See the list of states with how long they store the specimens here: https://www.cchfreedom.org/files/files/Newborn%20Retention%20All%2050%20States%202018.pdf https://www.cchfreedom.org/files/files/Newborn%20Retention%2... Governments might use this archive to sequence the DNAs down the road and then use it similarly to how they are already using those private services. Prices of sequencing are sinking as we speak.
- refurb 8y ago
  Fair point about keeping the samples!

jcims 8y ago

I wonder if it's legal to leave the state to deliver your baby for the sole purpose of dodging the collection.

winston_smith 8y ago
All 50 states have screening programs, so you'd have to go international. But you can refuse the test, and in fact the Mayo Clinic Labs have a test they can mail to your doctor that you can use instead: https://www.mayocliniclabs.com/test-info/newborn/index.html https://www.mayocliniclabs.com/test-info/newborn/index.html Better plan it in advance though.