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Reading other replies to your original post is alternately enlightening and incredibly frustrating. So much armchair crap from people who have clearly never enc
by darkerside 8y ago
Reading other replies to your original post is alternately enlightening and incredibly frustrating. So much armchair crap from people who have clearly never encountered anything outside of established science and so refuse to believe that anything outside of established science can exist! As if established science were somehow virgin birthed into existence, and not built upon centuries of painstaking observation and analysis.
Especially considering your form of CF is atypical, you'd think researchers would be tremendously interested in identifying a possibly conflated disease that presents with the same symptoms.
- DoreenMichele 8y agoIt's definitely very frustrating. In the good news column, this discussion is the most meaty engagement I've ever gotten and I'm generally pleased with this unexpected turn of events. I think the most charitable reading I can give is that when I was much sicker, I tended to do a poor job of trying to present my case and "you never get a second chance to make a first impression." Hopefully the silver lining is that some people will recognize how much my writing has improved over time and will see my past typo-filled and often not very coherent posts as compared to later ones as evidence that my claim that I was very sick at one time and I've gotten healthier holds water and makes sense, even without ever meeting me in person.