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Disclaimer: I currently work for a genetics genealogy company mentioned in this article. My comments are my own. Some relevant previous comment threads of mine
by inetknght 8y ago
Disclaimer: I currently work for a genetics genealogy company mentioned in this article. My comments are my own. Some relevant previous comment threads of mine about other DNA related articles: [0], [1], [2], [3]
Personally, I would love to help create legislation aimed to protect consumers from perceived and actual problems related to DNA sequencing and analysis. I don't know how though and I fear it'd fall to the back burner in the current US political climate. Our customers are not only US but international though and that presents yet another dimension to the challenges therein.
This article states:
> Whatever your ancestry results, don't get too attached to them. They could change.
That is absolutely correct. I've stated why in a previous comment [1]; Some DNA analysis software employ stochastic algorithms. That means that the answer they provide can be different if run more than once.
The article also states:
> Despite the popularity of ancestry testing, there is absolutely no government or professional oversight of the industry to ensure the validity of the results.
That is also correct. I've heard peers state that the industry isn't regulated outside of the field of medicine during product discussions. I think that's something which needs to be addressed: leaving it unaddressed can encourage predatory business behavior.
[0] https://news.ycombinator.com/item?id=18196717 https://news.ycombinator.com/item?id=18196717
[1] https://news.ycombinator.com/item?id=18196984 https://news.ycombinator.com/item?id=18196984
[2] https://news.ycombinator.com/item?id=18564380 https://news.ycombinator.com/item?id=18564380
[3] https://news.ycombinator.com/item?id=18569659 https://news.ycombinator.com/item?id=18569659
- buboard 8y ago> there is absolutely no government or professional oversight They are not allowed to sell health-related reports anymore in all of europe and other countries. While i think that some regulation and standards would be good, banning it overall was a dumb measure.
- inetknght 8y agoCan you quote a specific law for that?
- klmr 8y agoWell 23andme was specifically reprimanded by the FDA for their health related information and blocked from publishing future health advice, until they got limited approval after finally complying with regulation. So it’s inaccurate to say that there is no oversight, although I agree that the current oversight is clearly insufficient, in addition to being post-hoc.
- buboard 8y agohttps://link.springer.com/article/10.1007/s12687-017-0344-2 https://link.springer.com/article/10.1007/s12687-017-0344-2 https://int.customercare.23andme.com/hc/en-us/articles/217696258-Will-I-receive-health-reports- https://int.customercare.23andme.com/hc/en-us/articles/21769...
- inetknght 8y agoExcellent, thank you!