2 ms·
My son was diagnosed with Infantile Spasms when he was six months old. IS is a somewhat rare seizure disorder with those affected at great risk for developmenta
by bdurbin 8y ago
My son was diagnosed with Infantile Spasms when he was six months old. IS is a somewhat rare seizure disorder with those affected at great risk for developmental disabilities and autism. I can relate to the author's initial feelings and I also struggled with what I called "dark thoughts" in the first weeks after his diagnosis. Luckily these thoughts passed fairly quickly. It has been a year since his initial diagnosis, and though there have been struggles and setbacks, he is making progress and is the center of my world in a way that I never knew was possible. The experience is definitely causing me to reevaluate my definition of success and ideas of what constitutes a full life.