3 ms·
This is very uplifting news! This makes me feel very hopeful about the future, too. I personally have 2 rare autoimmune neurological diseases that affect my pe
by disabled 8y ago
This is very uplifting news! This makes me feel very hopeful about the future, too.
I personally have 2 rare autoimmune neurological diseases that affect my peripheral nervous system. One of them is very rare, and there is only case reports and cohorts of it, at best, in the medical literature.
There will likely never be an FDA-approved treatment for what I have, and this is why precision medicine needs to exist formally, with proper regulation via government. Unfortunately, the United States government has not been adapting, in a progressive way, to the changing times, with respect to emerging technologies, in general.
This sounds strange, but the lack of a reforming/progressive government is the greatest threat to my well being with rare neurological diseases and being disabled.
I hope that therapies and cures can come sooner than later for everyone. I also hope these therapies are not prohibitively expensive or inaccessible.