3 ms·

I don't even see a name of the creator on this site. Personally, I won't ever submit personal genome data to an anonymous site like this, and no one else should

I don't even see a name of the creator on this site. Personally, I won't ever submit personal genome data to an anonymous site like this, and no one else should either. Aren't there also legal implications to hosting personal health data online like this? I understand they claim to delete the data after the processing, but can we really trust an opaque process like this?

Beefin 8y ago
My name's Ethan, you can email me at ethan@meports.com and my personal website is ethansteininger.com. All open ! What aspects of transparency would you be looking to learn more about in order to grant more trust?
- nickthegreek 8y ago
  I think the biggest concern that people might see is how are you making money. With promethease, we give them a small amount of money. People are going to assume that the only way to generate income on this project is the selling of user data or keeping it to build a database to use for analysis and then selling that data. This site could use a bit more information about how the analysis is being done and what benefits it offers over similar sites.
  - Beefin 8y ago
    Great feedback, I appreciate it. Our office's page is how we make money. Offices embed the button on their webpage and receive your report upon which they're able to prescribe certain preventative plans.
- chris_mc 8y ago
  I'd like to see a technology explanation (in gory detail, and open sourced would be better) for how you keep the genome data ephemeral and secure and how you comply with HIPAA laws as well as the FDA. This software has features for which you very likely need to submit a 510k and associated regulatory paperwork, especially if you provide the data to a doctor to use to prescribe any sort of medical care.
  - Beefin 8y ago
    This is incredible advice I really appreciate it.

3 ms·

I don't even see a name of the creator on this site. Personally, I won't ever submit personal genome data to an anonymous site like this, and no one else should

by chris_mc 8y ago

Beefin 8y ago
My name's Ethan, you can email me at ethan@meports.com and my personal website is ethansteininger.com. All open ! What aspects of transparency would you be looking to learn more about in order to grant more trust?
- nickthegreek 8y ago
  I think the biggest concern that people might see is how are you making money. With promethease, we give them a small amount of money. People are going to assume that the only way to generate income on this project is the selling of user data or keeping it to build a database to use for analysis and then selling that data. This site could use a bit more information about how the analysis is being done and what benefits it offers over similar sites.
  - Beefin 8y ago
    Great feedback, I appreciate it. Our office's page is how we make money. Offices embed the button on their webpage and receive your report upon which they're able to prescribe certain preventative plans.
- chris_mc 8y ago
  I'd like to see a technology explanation (in gory detail, and open sourced would be better) for how you keep the genome data ephemeral and secure and how you comply with HIPAA laws as well as the FDA. This software has features for which you very likely need to submit a 510k and associated regulatory paperwork, especially if you provide the data to a doctor to use to prescribe any sort of medical care.
  - Beefin 8y ago
    This is incredible advice I really appreciate it.