3 ms·
That article was pretty helpful. Now I am entering the rabbit hole of reading about 23andme data sharing. What strikes me as interesting is their current busin
by occamschainsaw 8y ago
That article was pretty helpful. Now I am entering the rabbit hole of reading about 23andme data sharing.
What strikes me as interesting is their current business model: customers are paying them and answering their survey questions. That is quite brilliant, they get specifics about the people in their existing dataset, and once a critical statistical mass has been reached, they can find correlations between traits and genomic data.
I would be happy to voluntarily provide my time, effort and data towards medical research. While I don't have ethical problems right now (I don't expect a lot of privacy anyways), there is a small nagging fear that these things could bite me 20 years down the line when these genomic tests are much more sophisticated and I have already given them my genome. Small benign hypothetical example: I start seeing ads about cilantro on Facebook.
That fear was overpowered by my curiosity to learn about my genome. That's on me.