6 ms·
I've been dealing with Hashimoto's symptoms for more than 5 years now (and possibly Addison's). All my thyroid and adrenal hormones were completely out of whack
by Axsuul 8y ago
I've been dealing with Hashimoto's symptoms for more than 5 years now (and possibly Addison's). All my thyroid and adrenal hormones were completely out of whack and I suffered greatly. Went on various combinations of hormone replacement, tried various diets, spent tranches of money on supplements and alternative therapies, and have seen close to about 20 different specialists. Everything I've tried at best gave me clues about my condition but has never brought me anywhere close to normal. I suppose because I was never treating the root cause of it all.
Recently I went to an internist who ran an infectious disease panel on me. HHV-6 came up very high. Since then, I've gone on valganciclovir (Valcyte), an anti-viral that is not FDA-approved yet for treating HHV-6 but has shown promising results from studies[1]. Stanford has also been at the forefront of this research when it comes to treating CFS patients with high titers of HHV-6.
I don't have a success story yet but it's been extremely promising so far. I've only been on this treatment option for a month and my sleep has never been better, it has been moving the needle on some of my most stubborn of symptoms, and I finally feel like I'm making progress.
It also makes sense as a root cause. I donated my kidney about 5 years ago and that's when everything started to go downhill. Even though HHV-6 is a virus that almost every human being on the planet has, my compromised immune system at the time likely allowed the virus to re-activate to become a persistent chronic infection.
I hope this helps. In general, there has been surmounting evidence of viruses behind many chronic diseases. Just the other day there was post on Hacker News linking Alzheimer to the Herpes virus[2].
1. http://hhv-6foundation.org http://hhv-6foundation.org
2. https://news.ycombinator.com/item?id=18265115 https://news.ycombinator.com/item?id=18265115
- hycaria 8y agoWhy did you donate your kidney ?
- Axsuul 8y agoTo my father who had chronic kidney disease (Stage 5)
- notabee 8y agoWhat was a high titer for you? I actually ordered myself an HHV-6 test and mine was around 16 or so. Also, your story is so familiar. So many attempted treatments and doctors. It's very difficult to find a legitimate doctor on the forefront of therapies like this that isn't a dangerous quack.
- rorykoehler 8y agoThanks for this. I also have HHV-6 outbreaks on occasion. I will definitely investigate further. I have reached out to my rheumatologist for an infectious disease specialist referral. I'm curious how did you find yours? Are their specific terms I should google apart from infectious disease specialist?