When searching use site:.edu for medical research. From the experience of having to go through huge medical situations for my son and younger sister (Both pass

When searching use site:.edu for medical research. From the experience of having to go through huge medical situations for my son and younger sister (Both passed away from cancer), a niece with extremely aggressive MS you need more then a few minute conversation with a doctor. Doctors are amazing and great but you yourself have to be your own expert. Once you start having more then one doctor you need to not make assumptions. Also make sure you have someone else with you at the doctor meetings. I can't tell you how many times someone I trusted caught something we missed or remembered the doctor conversation better then I did. a) NEVER assume that the doctor remembers every detail or even major issues about your case. b) NEVER assume that that doctors talk to each other about your case (Because they never do except when it is time to make a decision and someone will always just defer to the other). Treat each doctor like they are a silo of expertise and that you make sure you ALWAYS communicate what the other doctors have told you. They only have a few minutes so make sure you have things written down and ready to share. Doctor A said this and Doctor B said this .... Pro-Tip - NEVER tell any doctors diagnosis from other doctors unless they specifically ask you. You might lead them in their thinking and they go down the wrong path and miss something. c) NEVER assume that they know everything. They don't, but they really do try to be the most informed they can be. So it is okay to have questions about research or treatments they you have learned about. Never make a suggestion or a diagnosis about yourself it puts the doctors into a bad mood or defensive. d) Find one of the doctors or Nurse Practitioners (these nurses really normally run the whole show in the office on behalf of the doctor) and tell them you need someone to help you if you have a question. I have found that when things are very serious that someone will have compassion and go the extra mile for you. Because when you or a loved one are sick you can make a lot of emotional decisions that aren't beneficial. Have someone that you can talk things through so you can make sure your thinking through the facts correctly. They don't need to worry about making decision just to help fact check you or correct something medically that you messed up. Just don't over whelm them with multiple of questions limit it to just a few and something that doesn't take a lot of time. Praying and hoping that something new will cure you soon.