4 ms·
In 2009, when my wife was 20 weeks pregnant, we were told that our little girl in the womb had spina bifida. We had never heard of it. The next day we travele
by trey-jones 8y ago
In 2009, when my wife was 20 weeks pregnant, we were told that our little girl in the womb had spina bifida. We had never heard of it. The next day we traveled to Atlanta to see a specialist and get some more information and a second opinion.
One of our options was to move to Philadelphia for probably 6-8 months to be a part of a trial one of the in-utero surgeries referenced here. We declined for several reasons:
* All the daunting decisions that might come with relocation
* Possibility of her being in the control group
* Additional risk to her from in-utero surgery
* Unknown benefit compared to post-natal surgery
Maybe some others. For us, relocation would have been a huge disruption of our life and goals at the time. If not for that we might have been more interested.
I sometimes wonder if I should regret that decision, now that studies are showing outcomes to be better overall, but I don't. We are happy. Our child is not without issues, but she's OK, and we obviously have no insight on how making the opposite decision would have changed her life or ours.
My wife was also able to have VBAC for both of our other children. I'm not sure this would have been possible, had we gone through with this. A small thing, but not insignificant to us.
- myth_drannon 8y agoHumans are bad at assessing risks. 1 out 1000, sounds really low but to the one person it happens, it is everything.