4 ms·
Finally a thread where I can contribute! I was part in the Finnish APPAC trial (published on JAMA/2015). In April 2012 I was in an out of the hospital for fou
by httpsterio 8y ago
Finally a thread where I can contribute!
I was part in the Finnish APPAC trial (published on JAMA/2015).
In April 2012 I was in an out of the hospital for four or five times with intensive stomach pains, but as they weren't localised in the mcburney area and my white cell counts weren't elevated, I just got sent home with painkillers.
The last time my white cell counts were slightly elevated (around 36 when under 14 is considered to be normal) and the stomach pains were worsening while jumping and the pain localising in the lower right of my stomach I was personally sure about what I had. Doctors still disagreed.
I was then told that there's an experimental trial and if I sign up for it, they'll do a CT scan (I had begged for this the previous visits). Lo and behold, the scan showed inflammation not caused by a stone.
I got ertapenem intravenously for three days and 7 days of metronidazole and levofloxacin. For about a year everything was fine, but I started to get occasional localised pains again, but they came and went and never really worsened. I think between 2013 and 2017 I've been to the hospital about 6 or 7 times because of the pains but they've always resolved by itself.
Two months ago it came back again and it was worse than the first time I got diagnosed. Spent two nights in the ER waiting for surgery. Again, ct scanned and blood levels show inflammation. I get sent home with pain killers and metronidazole and floxacin. ER nurses and surgery doctors were baffled by the case, said they've never seen an inflammated appendix been put on the non-urgent surgery waiting list.
Got told today that it's going to be removed this year, lol. After six years and asking every time to have it removed.
Approximately 80% of the appendicitis cases are not at risk of bursting anytime soon so an immediate surgery is not necessary. The rest are complicated and need urgent surgery.
I've been told that about 74% are fine after the antibiotics for the first year but a majority in the trial have ended up with it removed within a 5 year window. So, while having an appendix would be ideal and it's cheaper to throw a ct and some medicine at the patient, a surgery is still almost always needed.
In my personal experience, I have a strong gut feeling that a low carb diet might've affected how many times my appendix has shown slight signs of inflammation. Up until 2016 I was in ketosis for a four years and that was when I had issues most often (although the latest has been the worst overall). The sample size of this idea is just n=1 so take it with a grain of salt.
Oh, a sidenote, latest hospital ordeal put me in bed rest for almost a month because metronidazole did not play nicely with my ankles and I lost my job during that time so I'm also going through talks with my lawyer about a suit for unlawful termination. Fun times.
Please do ask questions if I can clarify anything or you want to hear about something specific!
- sah2ed 8y agoI'm surprised to hear you lost your job because of health issues in ... Finland? That kind of wrongful termination sounds like something that would happen in the States not Europe. Correct me if I'm wrong.