3 ms·

(OP) Thank you. I was informed that my potassium levels were low after the surgery and was asked to consume tender coconut water & banana. Are you getting you

(OP) Thank you. I was informed that my potassium levels were low after the surgery and was asked to consume tender coconut water & banana. Are you getting your Mg & K from diet? Also tips on 'right fats' would be helpful.

DoreenMichele 8y ago
Potassium is not usually a big issue for me. I do get bananas when it's an issue and I can't think of any other high potassium foods because it isn't something I struggle with. I usually get magnesium from nuts, like cashews, and dark chocolate. If you supplement magnesium, look for magnesium glycinate as a highly bioavailable form. Fats: I have a different genetic disorder from you. This may not apply to you. I specifically misprocess fats. I have done some reading and tracked my diet and found which fats work for me by trial and error. Medium chain triglycerides are medically recommended for many conditions because the body has an easier time processing them. Butter is a reasonable source. Coconut oil and palm oil are high in MCT. I avoid peanut oil and canola oil. I mostly avoid corn oil. They all aggravate my condition. I strongly favor butter. When I was sicker, I looked for organic butter and sometimes clarified it myself to make ghee. I also tolerate animal fats well. When my lungs aren't bothering me, I eat bacon regularly. My genetic disorder impacts my lung health and bacon is high in either nitrates or nitrites and it aggravates my lung issues. I cut back on the bacon when my lungs are acting up. Cheese is another source of healthy fats that I regularly consume. I also tolerate sunflower oil well. I regularly consume nuts and seeds. They are a good source of healthy fats, though I read labels because many contain oils I avoid if they are roasted. In the US, peanut oil is frequently used to roast nuts. I look for dry roasted if at all possible. When I need cholesterol to support nerves healing, I eat bacon, eggs and butter. You also need extra b vitamins when nerves are healing. When I was much, much sicker, I sometimes had agonizing pain in my teeth and jaw. Butter sandwiches or butter added to a potato dish fixed it. I used to sit and eat up to 3/4 of a stick of butter on a roll or two to stop the pain. I'm no longer terribly deficient. I couldn't possibly eat that much butter in one sitting now. But that used to be the only thing that stopped my bone pain. Be advised that all coconut products, whether coconut oil or coconut water, promote diarrhea. Start with small amounts at a time or you will spend all your time in the bathroom.
- Abishek_Muthian 8y ago
  (OP) Very detailed, much appreciated. For the past 3 years, I had been consuming balanced diet with oats or similar cereals for breakfast, wheat & occasional rice for lunch & only fruits with nuts for dinner. 3-4 cups of milk with tea/coffee every day. I assume my bones wasn't able to absorb necessary calcium.
  - DoreenMichele 8y ago
    I don't know anything about your genetic disorder. My genetic disorder promotes osteoporosis. My personal opinion: The mechanism is two fold. My condition makes people too acid and the body strips calcium from the bones to buffer the blood against that. Our cells are also known to hoard calcium. I believe this is also a buffering mechanism. Some people with my condition try to avoid calcium because high levels of calcium in the cell is associated with cell death. So they see the calcium as a problem. I see it as a symptom of serious problems. I see it as the body desperately trying to protect itself against other chemical derangement. My condition also is associated with an excess of glutathione in the cells. I think this is also another buffering mechanism. Glutathione smells very sour, like skunk. As I slowly resolved the chemical derangement of my body, I sometimes went through periods where my poop smelled like skunk. I think I was dumping the glutathione that was no longer needed as a buffer. Do you know the specific mechanism behind your genetic disorder? The specific mechanism for mine is a defect in a cell channel. This cell channel is a gating mechanism for certain molecules. When it is defective, there is a bottleneck in the system. With doing research, I have been able to work around that and get things working closer to normal. If you know the mechanism behind your disorder, it may be possible to do something similar and make dietary changes and lifestyle changes that help compensate for whatever your body does different from the norm. Which is a very long way of agreeing that your body may not be absorbing or using calcium normally and you may need to alter your diet permanently to account for your genetic disorder and whatever it does to how your body handles calcium. And that may not be straight forward and obvious. You would need to understand the process or processes causing the calcium deficiency. It may not be as simple as the bones not absorbing calcium. It isn't with my condition.

DoreenMichele 8y ago

Potassium is not usually a big issue for me. I do get bananas when it's an issue and I can't think of any other high potassium foods because it isn't something I struggle with. I usually get magnesium from nuts, like cashews, and dark chocolate. If you supplement magnesium, look for magnesium glycinate as a highly bioavailable form. Fats: I have a different genetic disorder from you. This may not apply to you. I specifically misprocess fats. I have done some reading and tracked my diet and found which fats work for me by trial and error. Medium chain triglycerides are medically recommended for many conditions because the body has an easier time processing them. Butter is a reasonable source. Coconut oil and palm oil are high in MCT. I avoid peanut oil and canola oil. I mostly avoid corn oil. They all aggravate my condition. I strongly favor butter. When I was sicker, I looked for organic butter and sometimes clarified it myself to make ghee. I also tolerate animal fats well. When my lungs aren't bothering me, I eat bacon regularly. My genetic disorder impacts my lung health and bacon is high in either nitrates or nitrites and it aggravates my lung issues. I cut back on the bacon when my lungs are acting up. Cheese is another source of healthy fats that I regularly consume. I also tolerate sunflower oil well. I regularly consume nuts and seeds. They are a good source of healthy fats, though I read labels because many contain oils I avoid if they are roasted. In the US, peanut oil is frequently used to roast nuts. I look for dry roasted if at all possible. When I need cholesterol to support nerves healing, I eat bacon, eggs and butter. You also need extra b vitamins when nerves are healing. When I was much, much sicker, I sometimes had agonizing pain in my teeth and jaw. Butter sandwiches or butter added to a potato dish fixed it. I used to sit and eat up to 3/4 of a stick of butter on a roll or two to stop the pain. I'm no longer terribly deficient. I couldn't possibly eat that much butter in one sitting now. But that used to be the only thing that stopped my bone pain. Be advised that all coconut products, whether coconut oil or coconut water, promote diarrhea. Start with small amounts at a time or you will spend all your time in the bathroom.

Abishek_Muthian 8y ago
(OP) Very detailed, much appreciated. For the past 3 years, I had been consuming balanced diet with oats or similar cereals for breakfast, wheat & occasional rice for lunch & only fruits with nuts for dinner. 3-4 cups of milk with tea/coffee every day. I assume my bones wasn't able to absorb necessary calcium.
- DoreenMichele 8y ago
  I don't know anything about your genetic disorder. My genetic disorder promotes osteoporosis. My personal opinion: The mechanism is two fold. My condition makes people too acid and the body strips calcium from the bones to buffer the blood against that. Our cells are also known to hoard calcium. I believe this is also a buffering mechanism. Some people with my condition try to avoid calcium because high levels of calcium in the cell is associated with cell death. So they see the calcium as a problem. I see it as a symptom of serious problems. I see it as the body desperately trying to protect itself against other chemical derangement. My condition also is associated with an excess of glutathione in the cells. I think this is also another buffering mechanism. Glutathione smells very sour, like skunk. As I slowly resolved the chemical derangement of my body, I sometimes went through periods where my poop smelled like skunk. I think I was dumping the glutathione that was no longer needed as a buffer. Do you know the specific mechanism behind your genetic disorder? The specific mechanism for mine is a defect in a cell channel. This cell channel is a gating mechanism for certain molecules. When it is defective, there is a bottleneck in the system. With doing research, I have been able to work around that and get things working closer to normal. If you know the mechanism behind your disorder, it may be possible to do something similar and make dietary changes and lifestyle changes that help compensate for whatever your body does different from the norm. Which is a very long way of agreeing that your body may not be absorbing or using calcium normally and you may need to alter your diet permanently to account for your genetic disorder and whatever it does to how your body handles calcium. And that may not be straight forward and obvious. You would need to understand the process or processes causing the calcium deficiency. It may not be as simple as the bones not absorbing calcium. It isn't with my condition.