3 ms·

I have syringomyelia which in the worst case can result in paralysis and the surgery is one of those 50/50 cases (50% improvement, 50% a lot worse - They put a

I have syringomyelia which in the worst case can result in paralysis and the surgery is one of those 50/50 cases (50% improvement, 50% a lot worse - They put a shunt into your spine to drain it which means pretty high risk of infection in the spine). Spinal stuff scares the crap out of me but at least the periodic MRI's show it's stable, so I'll 'just' be stuck with numbness/pain and a limp in the best case. I'm glad you did documented this, anyone googling their medical condition (and everyone does) may find it :), glad you are on the mend as well.

52-6F-62 8y ago
I remember being about 13 or 14 years old and sitting in a meeting with my parents and a few surgeons discussing the probabilities of left-side paralysis in my younger brother pending a brain tumor removal (roughly the size of a navel orange, if I recall correctly). That prospect was frightening to consider... he thankfully survived with few side effects, and no paralysis. I wish you and the author all the best. People like me who've never had to stare into that abyss personally can only imagine.
- noir_lord 8y ago
  > People like me who've never had to stare into that abyss personally can only imagine. I found out about the syringomyelia 3 weeks after an 8 year relationship broke down (she cheated) and my business was failing. 4 years later I'm in a happy relationship with the woman I want to spend my life with, I have a job I love with people I like and the business is a distant memory. Taught me a valuable lesson, not giving up is more important than pretty much anything else. Found out 6mths ago I also have Crohns, just shrugged and carried on, life is full of shit you can't control so focus on the things you can - mainly your reaction to events.
  - 52-6F-62 8y ago
    > Taught me a valuable lesson, not giving up is more important than pretty much anything else. That's a lesson often hard-learned. Sounds like you've gained a lot of wisdom through those experiences. I wouldn't wish those conditions on anyone, but it sounds like you've come out better anyway. All the best.
  - Unknoob 8y ago
    > life is full of shit you can't control Pun intended?
    - noir_lord 8y ago
      Very much so.
  - open-source-ux 8y ago
    You might enjoy this story: The stomach-churning one-night stand: https://www.bbc.co.uk/news/disability-45045223 https://www.bbc.co.uk/news/disability-45045223
Abishek_Muthian 8y ago
(OP) I feels good to know that your surgeries were helpful & you are doing better. Information on the risk of infections on the permanent implants are very minimal albeit unclear. Recently on a Reddit thread this was widely discussed[1]; some say the risk is only for couple of months after surgery & others included papers to say the risk is permanent - I didn't include this in my content as I didn't feel confident to do so without proper research. [1]: https://www.reddit.com/r/todayilearned/comments/9b1fjb/til_titanium_is_used_in_medical_implants_because/ https://www.reddit.com/r/todayilearned/comments/9b1fjb/til_t...

52-6F-62 8y ago

I remember being about 13 or 14 years old and sitting in a meeting with my parents and a few surgeons discussing the probabilities of left-side paralysis in my younger brother pending a brain tumor removal (roughly the size of a navel orange, if I recall correctly). That prospect was frightening to consider... he thankfully survived with few side effects, and no paralysis. I wish you and the author all the best. People like me who've never had to stare into that abyss personally can only imagine.

noir_lord 8y ago
> People like me who've never had to stare into that abyss personally can only imagine. I found out about the syringomyelia 3 weeks after an 8 year relationship broke down (she cheated) and my business was failing. 4 years later I'm in a happy relationship with the woman I want to spend my life with, I have a job I love with people I like and the business is a distant memory. Taught me a valuable lesson, not giving up is more important than pretty much anything else. Found out 6mths ago I also have Crohns, just shrugged and carried on, life is full of shit you can't control so focus on the things you can - mainly your reaction to events.
- 52-6F-62 8y ago
  > Taught me a valuable lesson, not giving up is more important than pretty much anything else. That's a lesson often hard-learned. Sounds like you've gained a lot of wisdom through those experiences. I wouldn't wish those conditions on anyone, but it sounds like you've come out better anyway. All the best.
- Unknoob 8y ago
  > life is full of shit you can't control Pun intended?
  - noir_lord 8y ago
    Very much so.
- open-source-ux 8y ago
  You might enjoy this story: The stomach-churning one-night stand: https://www.bbc.co.uk/news/disability-45045223 https://www.bbc.co.uk/news/disability-45045223

Abishek_Muthian 8y ago

(OP) I feels good to know that your surgeries were helpful & you are doing better. Information on the risk of infections on the permanent implants are very minimal albeit unclear. Recently on a Reddit thread this was widely discussed[1]; some say the risk is only for couple of months after surgery & others included papers to say the risk is permanent - I didn't include this in my content as I didn't feel confident to do so without proper research. [1]: https://www.reddit.com/r/todayilearned/comments/9b1fjb/til_titanium_is_used_in_medical_implants_because/ https://www.reddit.com/r/todayilearned/comments/9b1fjb/til_t...