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Exactly. There is no way to make that work without ending up with a pile of absurd results, or results that are "right" but for legally contorted reasons. The
by _jal 8y ago
Exactly. There is no way to make that work without ending up with a pile of absurd results, or results that are "right" but for legally contorted reasons.
The answer (to this narrow question[1]) is to not do business with shops like 23andme, who are horrible gossips. Find a service that actually respects you and your wishes if you want a test.
Admittedly this will become harder as testing becomes part of medical care. But telling your doctor not to tell the insurance company what's going on would never fly anyway.
[1] To the broader questions of medical privacy, well, burning the private insurance industry to the ground and chumming the PBMs would be a good start.
- s73v3r_ 8y agoI think the actual correct answer is to legally ban services like 23andMe, or anything like them, from talking to insurance companies. Finding a service that actually respects you is exponentially more difficult than it sounds, as that relies on all the incidents already having been found out. Before this news, most people had no idea that this was happening.
- PurpleBoxDragon 8y ago>Find a service that actually respects you and your wishes if you want a test. If they hold onto the data for any purpose at all, then their is always the risk that they go bankrupt and ownership of the data passes to someone who doesn't respect it.