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Yes, the OmniPod has no direct connection to the Dexcom CGM, I have to observe BG moving up and enter the number into the OmniPod for it to calculate a correcti
by zaroth 8y ago
Yes, the OmniPod has no direct connection to the Dexcom CGM, I have to observe BG moving up and enter the number into the OmniPod for it to calculate a correction dose. So, for example, overnight this could still mean programming multiple corrections throughout the night after a slow-carb hard-to-dose meal.
For the last year we’ve been going to Clara Barton camp which is for kids with T1D. Most of the counselors are also living with T1D and one night they did a panel with several of them and a room full of parents.
We got to hear some very important perspectives, but one thing we consistently heard is that every kid with T1D will go through these burn out periods.
While of course it’s a health concern and we never want to see those high numbers, there will be time periods where blood sugar control slips and the A1Cs head up and it’s a totally legitimate reaction as a teenager to be seeking some space from this condition which just never lets up and insists on setting us apart from our peers multiple times throughout the day.
Just like us software engineers will hit a wall and “burn out” from pushing too hard for too long, I think it’s not possible for the human brain, certainly an adolescent brain, to handle the constant never-ending burden of carb counting, dosing, checking, correcting, day in and out.
Switching devices might help, but of course is also a massive investment in time and energy to come up to speed on a new system, nevermind the financial side of it.
One thing we heard from several of the counselors was that in those periods of burn-out, they didn’t need their parents to “fix” anything and often rushing in to try to make changes to fix it ended up counterproductive because it’s ultimately not something that can be fixed but just be overcome. They didn’t need to hear how important it was, they knew that better than we as parents even. Burn-out is a real thing that they are entitled to do. Listen, let them vent, let them cry, let them cheat even if it causes a temporary high, not because that’s the lifestyle you want to encourage but because somehow you have to find these moments to get space and control and feel like it’s not the T1D dictating everything all the time.
Even with OmniPod which is a neat little device, there are weeks when one child will just say, “You know what, I just really don’t want a pod on this week” and we pull out the Lantus from the back of the fridge and do injections for a few days, and yeah BG control goes to shit, and then we go back to the pods with renewed appreciation for the convenience, yes, and the trade-offs.
The Dexcom CGM is cloud connected, and of course you configure which devices can see your BG and also what times of day it’s shared. So we also heard some interesting and at times hilarious stories about the power struggles of college kids sharing (and not sharing) their BG numbers with their parents.
Most importantly just know burn-out is universal and inevitable and also will pass.
- jcims 8y agoWow. Thank you so much for this perspective. My youngest has another issue where her uncorrected vision is incredibly bad, so I think at times she just feels like her body is trying to punish her. I had never considered a camp. It looks like the Clara Barton program has wrapped for the summer but it or something like it might be just what she needs. Will continue to look at options like that. I can see the weary in her eyes when things get out of hand and know she's at that point you describe. I like the idea of not being able to 'fix' it but to overcome it, and will start incorporating that. I've definitely backed off of handling things as much and am finding that I only have the 3 hr sleep cycle about once a week now rather than every day. I'll also talk to her about moving back to MDI for a little while. We discussed it previously and she wasn't super game, but it might not be a bad option. Someone a while back said that they were surprised how much the fact that they were tied to a little device by a tube made them feel infirm, so going old-school for a week might help in a few different ways (will definitely have to work with our endo on that though) Again, thank you so much for your words. They have been immensely helpful.