3 ms·
I know this isn't a popular stance here but I take a number of issues with this article > As the infamous pharma bro Martin Shkreli demonstrated, pharmaceutica
by aaavl2821 8y ago
I know this isn't a popular stance here but I take a number of issues with this article
> As the infamous pharma bro Martin Shkreli demonstrated, pharmaceutical companies can and will make life-saving drugs prohibitively expensive to juice their bottom line.
I agree that pharma pricing is a problem, but framing the public debate around the issue with Martin shkreli basically ensures the conversation will be based on sensationalism and appeals to emotion, rather than facts. As it stands now, the public doesn't understand pharma pricing so can't assess how likely any proposed legislation is to actually lower price. That enables the pharma lobby to work behind the scenes to make sure any govt actions sound important but are toothless. There are many pharma pricing cases that are more egregious, look at acthar gel as an example. If you want a non-biased, economics driven assessment of value based pricing for drugs look at ICER or NICE
> This means that 23andMe customers will, in effect, be charged twice for any potential “innovative new medicines” their DNA helps produce. The first time they paid for the DNA sequencing service; the second time they pay for the medicine that it helps create
This conveniently ignores the hundreds of millions of dollars per medicine that pharma companies will have to invest to get a drug to market. Pharmas r&d productivity is on a steady decline. So GSK will probably spend a ton of money developing drugs based on this data, and it's likely that they won't end up with enough meaningful new medicines to offset the cost of research. I can elaborate if people want
> Another alternative would be for 23andMe to partner with non-profit public programs, such as the National Institute of Health’s precision-medicine initiative
In which case you'd be giving your data to Google, who works with this NIH initiative to analyze data [0]. Personally I'd rather GSK have my data than Google -- at least GSKs entire business model isn't selling personal data
[0] https://verily.com/projects/precision-medicine/precision-medicine-initiative/ https://verily.com/projects/precision-medicine/precision-med...