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23andMe Is Sharing Its Million Clients Data with Drug Giant GlaxoSmithKline
- PunchTornado 8y agoGood for genetic research and finding a cure for various diseases. I don't understand people getting crazy scared: "oh my God! some companies have a string of letters that resembles my genome. oh my. they're gonna use it to deny me healthcare. Stop genetic research!"
- nextlevelwizard 8y agoMy immediate thought was more: who is getting paid? Unless something has changed 23andMe costs money (I'm assuming that it is for-profit). Are the clients getting drugs for cheaper? Are they helping in general to make drugs cheaper? Is 23andMe giving money back to clients whose data they are selling? (I know it says sharing, but let's be honest someone at 23andMe is raking in the profits). Second would be privacy. I don't want some random drug company knowing that I might be in a risk group of getting some disease so they could target me better. Just in general seems shitty double dipping to first ask people to pay for your product and then turn around and sell the data to someone else.
- PunchTornado 8y agothey didn't turn around. This option to have your data shared with pharmaceuticals is opt in in your 23andMe account. I have it on.
- andygates 8y agoWe have a volunteer scheme here in the UK. The point, probably, is consent. This sort of thing needs to be opt-in or the pitchforks come out.
- PunchTornado 8y agowell, it is opt in if you read the article and go into 23andMe account you'll see that you have to specifically opt in to share the data.
- shanghaiaway 8y agoBrilliant con job.