4 ms·
23andme has consent to contact a majority of the 5 million who have used their service. It is likely that those who run the 300 thousand database cannot legally
by abcc8 8y ago
23andme has consent to contact a majority of the 5 million who have used their service. It is likely that those who run the 300 thousand database cannot legally contact those who have submitted samples or have no mechanism whereby that number of people are contacted and reconsented. This is just a hypothesis, we would need to read the consent forms to verify.
- ethbro 8y agoFurthermore, this solves one of the key problems 23andMe has had with the FDA over notifying users. Specifically, that the FDA prohibited them from proactivitely notifying users about potentially dangerous mutations. Looks like they've gotten approval for a few breast cancer risk markers now, but that's well short of what they could do. If you're notifying users about a drug discovery program... the FDA can't gripe.