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I see a lot of people making claims about 23andme that haven't used the product, and I just wanted to inform people that in the contract you sign with them, th
by jryan49 8y ago
I see a lot of people making claims about 23andme that haven't used the product, and I just wanted to inform people that in the contract you sign with them, they only share your data if you opt-in to it. They make this all very clear. You can also have them discard your sample and delete your info if you haven't opt-ed in to the research program.
Now trusting that 23andme is actually abiding by these rules is a different conversation.
- joering2 8y agoHave you EVEN read the title?? They are not sharing this information with private entity aka. opt-in/out. They made partnership research & development agreement in with GSK with invest over $300MM. 23and me is not sharing our data outside their fences BUT this agreement will let them bring GSK into their playground and do all sorts of stuff with your DNA. Worst case they will just buy the whole 23andMe as a company and once they own it, still your data technically haven't been opted-in/out anywhere, but Glaxo will do whatever they pleased with it :)
- jryan49 8y agoIt was made quite clear in the agreement that they cannot use data for research if you opt-out, even inside their own company. So you're saying any agreement someone has already made with 23andme in regards to their data usage has become null and void because of this investment? And would become if they were bought by another company?
- infodroid 8y agoIt doesnt really matter whether you opted in or out. In the end, all that matters is whether the projected profits from abusing your data exceed the projected legal costs of doing do.