If you want your baby screened but don't want your state to keep the sample, the mayo clinic has a screening panel that does all the federally recommended tests

If you want your baby screened but don't want your state to keep the sample, the mayo clinic has a screening panel that does all the federally recommended tests, and another one that does this and a bunch more. The doctors at Kaiser were totally useless when I asked about this: they'd go from "gee, I never heard about this" to "shrug, it's an official state program", and then they piled on the guilt trip about how urgent it is once my kid was born and I was sleep deprived. Bastards. So you have to research it yourself and get a pediatrician to order the test from Mayo before your child is born, so it's all arranged once you're in labor. Then make sure they use that test, and you opt out of the state test. (Or better yet, if your state claims it's mandatory, refuse the test and if they do it anyway you've got casus belli for a constitutional challenge)