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Story time, as is often the case when "studies" talk about medical risks. Couple years ago I started noticing these events, deja vu flashes, tingly right arm f

Story time, as is often the case when "studies" talk about medical risks. Couple years ago I started noticing these events, deja vu flashes, tingly right arm from the shoulder all the way down to my fingers, and then the inability to comprehend words for a few minutes. Never issues with coordination, because the first one I remember distinctly was riding a bike. Eventually was told they could be seizures, got an MRI and EEG and poof, there's a brain tumor, told was a DNET, in my left temporal lobe. After issues with anti-seizure meds, which are really annoying with so many side effects, I went with surgery to get the tumor yanked with the hope of them snagging the part causing the seizures, which apparently aren't caused by the tumor itself. A few weeks after the surgery, I was called back and told the tumor wasn't a DNET as expected, but a low grade glioma. Not the GBM as talked about in the article, but a regrowth where I'm on the schedule of MRI every three months to check to see how if it's growing back yet. I'm left handed, holding the phone to my left ear where the tumor was / is, which would fit along with what they're trying to show here. I'm 27 now, I never talked on the phone much, and I'm not going to sit here and try to find something to blame. Like casually mentioned at the end of the article, I'll go with saying it could be from "fallout from atomic bomb tests in the atmosphere", or, you know, bad luck.

cgb223 8y ago
Hey so I’m also left handed and have a lot of the same symptoms you’ve described. Can you explain the deja vu, tingling, etc symptoms a bit more This has me a little nervous and I want to be sure it’s something I need to get concerned about Did you actually end up having seizures? How did you know it was serious?
- jackschultz 8y ago
  It would be these events were I'd get the deja vu, the feeling of having a memory of experiencing something before, then tingling from the right shoulder down my arm to when it hit my fingers I'd feel a little hit in the head and lose words. That part is the seizure. I didn't know that was a type at all before looking it up online. These episodes grew over time too. That first I remember on a bike, the next was when reading a book and I was so confused where the words went and why I could only see symbols. Since it's the temporal lobe, only words. Though I talk to multiple people, like my mom, she says there were times in the past where, when talking to her, I'd have to say hold on and sit in silence for 30 seconds before being able to comprehend again. Eventually got to an every other day frequency before being told that those events could be seizures and I should get it checked out. In terms of seriousness, it's hard to say when that happened. I was told it looked like the benign DNET tumor and baby seizures that stopped with some drugs and I thought that was pretty funny how that happened to me. But then side effects from the first drugs kicked in and I had to switch. And then side effects from that drug kicked in and said screw it and have the surgery to get ride of the tumor and hopefully the part causing the seizures. Well that didn't work out, I still have different drugs and problems with those, and turns out it's a cancer tumor. Quite the turn. The seizures themselves aren't too serious, because there are drugs to stop them, but the side effect problems are the big part. What are the symptoms you've been having?

cgb223 8y ago

Hey so I’m also left handed and have a lot of the same symptoms you’ve described. Can you explain the deja vu, tingling, etc symptoms a bit more This has me a little nervous and I want to be sure it’s something I need to get concerned about Did you actually end up having seizures? How did you know it was serious?

jackschultz 8y ago
It would be these events were I'd get the deja vu, the feeling of having a memory of experiencing something before, then tingling from the right shoulder down my arm to when it hit my fingers I'd feel a little hit in the head and lose words. That part is the seizure. I didn't know that was a type at all before looking it up online. These episodes grew over time too. That first I remember on a bike, the next was when reading a book and I was so confused where the words went and why I could only see symbols. Since it's the temporal lobe, only words. Though I talk to multiple people, like my mom, she says there were times in the past where, when talking to her, I'd have to say hold on and sit in silence for 30 seconds before being able to comprehend again. Eventually got to an every other day frequency before being told that those events could be seizures and I should get it checked out. In terms of seriousness, it's hard to say when that happened. I was told it looked like the benign DNET tumor and baby seizures that stopped with some drugs and I thought that was pretty funny how that happened to me. But then side effects from the first drugs kicked in and I had to switch. And then side effects from that drug kicked in and said screw it and have the surgery to get ride of the tumor and hopefully the part causing the seizures. Well that didn't work out, I still have different drugs and problems with those, and turns out it's a cancer tumor. Quite the turn. The seizures themselves aren't too serious, because there are drugs to stop them, but the side effect problems are the big part. What are the symptoms you've been having?