3 ms·
I'm a skeptic, but knee-jerk skepticism is sometimes as bad as woo. I'm guessing that the downvoters have no experience with these kinds of conditions or what i
by JoshMnem 9y ago
I'm a skeptic, but knee-jerk skepticism is sometimes as bad as woo. I'm guessing that the downvoters have no experience with these kinds of conditions or what it's like to deal with the medical system around autoimmune conditions.
I could tell you many stories about it. I know one person who didn't get his autoimmune disease correctly diagnosed for 20 years. He now has serious problems due to lack of treatment for all that time. Even today, many doctors do not know basic information about those conditions (or sometimes even basic anatomy). The current state of autoimmune diagnosis is still absolutely terrible.
Woo is dangerous, but so is knee-jerk skepticism. I'm not complaining about modern medicine -- just that you shouldn't necessarily be so quick to downvote something if a medical doctor hasn't given their stamp of approval. Science does not have enough information yet to confidently and safely treat these problems, and it has provided many clues about the microbiome, intestinal permeability, and water fasting on the immune system. If you haven't heard of those things, I suggest reading some studies before downvoting.
- zilian 9y agoAs a matter of fact, I do know what you're talking about (AS). And I can't downvote, but I would ! ;) Promising mountains with "diets" is as bad or worse than doctors not really considering what's it like to live with autoimmune diseases / having trouble establishing diagnosis. Please link to peer-reviewed, serious papers showing results in double-blind studies if you wish to convince fellow hackers.
- JoshMnem 9y agoYou're reading too much into what I'm saying. I didn't promise mountains with "diets". I said that "Researchers should be paying more attention to those areas." I'm definitely not saying that the answer is going to be "just stop eating" or curing yourself with woo like homeopathy and goji berries. I don't think that something like water fasting will cure the autoimmune conditions of most people, but it's something that has such a dramatic effect on some autoimmune conditions that there should be more research in that area. Have you ever done 3-5 day water fasts with nothing but water? Hold your reaction until you have investigated the dramatic effects (but not cures) it has on many people with autoimmune conditions. I'm working this afternoon and don't have time to find links for you, but you can find my email address on my profile if you have questions about it. Edit: please send me an email if you read this. I will email you some links later if you will send me your constructive opinions after you read them. I think you may find the information interesting and possibly useful.
- zilian 9y agoThanks for the clarification. I will look into it !