3 ms·

I just had a look at your site. I think its very informative but just having so much text will put off a lot of people. There is just so much information that

I just had a look at your site. I think its very informative but just having so much text will put off a lot of people. There is just so much information that its kind of overwhelming. You really need to talk to a good designer on how to create a smaller but more graphical site which can convey the information layer by layer. And I can see how a game could help convey this information though I think a better illustrated website might be a cheaper and faster way to get a start. And for the people who are criticizing your work - I think you should ignore them. Help the ones that want the help and go from there. One simple way would be to list out the top 7 SAFE actions that you've taken that have helped with your CF. Put that on your front page. And then from there link to other pieces of information. That way the user has something useful right on the front page. The pared down checklist might be good enough. Right now its a link that I had to find - it would be good to put the most important information on the front page. After that you need to make the site more legible w.r.t font-size and the colors and the general design. From a tactical standpoint I would advertise for a web designer who also has CF. I'm guessing you might know how to find one. And then show him the site and ask their help. If your site helps them then its possible they will put in the effort to help others. Keep working on this. You can email me at railsnoob at yahoo dot com if you want me to review something.

Mz 16y ago
Thank you. I basically haven't been online the last few days. Happy to trip across this reply. I will keep your suggestions in mind, though right now there is no money to hire a designer. I did not start this site to make money and getting well has left me deeply in debt (though not getting well would likely have worse financial consequences and I at least have hope of cleaning up my financial mess now that I am healthy enough to work consistent overtime). I think the stuff I do is very safe. It is certainly safer than the path most people with my condition take. But what I am running into is that a lot of them just don't have background info I have and therefore people sometimes make extremely dumb mistakes that can seriously damage their health. So what seems "obviously" safe to me is not necessarily safe for someone who lacks general information about physiology, chemistry, or whatever and therefore doesn't know to avoid certain pitfalls. I'm actually glad to hear the amount of info is overwhelming. I always feel there is way too little info on the site. As for the people who criticize: To me, the main issue is that I have been thrown off some lists and the moderators usually side with the people who are attacking me. So if I don't deal in some fashion with my critics, I may be unable to reach those folks who are interested. Yes, when I really don't feel well (or people have been especially ugly to me), I whine and cry about how people are mean to me. But that isn't really my main concern. However, some folks have found the website on their own without first meeting me on an email list. And those folks typically are far more interested in and open to the information. So I have been rethinking my relationship to my audience, I guess. Thank you for the feedback! It's something to go on.

Mz 16y ago

Thank you. I basically haven't been online the last few days. Happy to trip across this reply. I will keep your suggestions in mind, though right now there is no money to hire a designer. I did not start this site to make money and getting well has left me deeply in debt (though not getting well would likely have worse financial consequences and I at least have hope of cleaning up my financial mess now that I am healthy enough to work consistent overtime). I think the stuff I do is very safe. It is certainly safer than the path most people with my condition take. But what I am running into is that a lot of them just don't have background info I have and therefore people sometimes make extremely dumb mistakes that can seriously damage their health. So what seems "obviously" safe to me is not necessarily safe for someone who lacks general information about physiology, chemistry, or whatever and therefore doesn't know to avoid certain pitfalls. I'm actually glad to hear the amount of info is overwhelming. I always feel there is way too little info on the site. As for the people who criticize: To me, the main issue is that I have been thrown off some lists and the moderators usually side with the people who are attacking me. So if I don't deal in some fashion with my critics, I may be unable to reach those folks who are interested. Yes, when I really don't feel well (or people have been especially ugly to me), I whine and cry about how people are mean to me. But that isn't really my main concern. However, some folks have found the website on their own without first meeting me on an email list. And those folks typically are far more interested in and open to the information. So I have been rethinking my relationship to my audience, I guess. Thank you for the feedback! It's something to go on.