2 ms·
> Quite dangerously, it suggests that all people in that partition have 'the same problem' At the moment there is little way to tell or reference whether a stu
by taurath 9y ago
> Quite dangerously, it suggests that all people in that partition have 'the same problem'
At the moment there is little way to tell or reference whether a studied cohort happens to be on one end of the spectrum or the other, or mixed between. I'm mostly advocating on behalf of adults and parents of those on the higher functioning end of the spectrum (because I'm a part of that group), who not only have to deal with a general lack of good age-specific information, but ALSO a huge amount of false-positive data. Most support groups for example are for caretakers of those on the lower end of the spectrum. As a result, those who could use data on their side of the spectrum to help themselves, or advocate for their own care almost always have to deal with wrong or misleading information.
Imagine you had an incurable illness that was moderately debilitating to you, but in harsher cases would paralyze the victims. If you or your doctor wanted to look up how to treat your symptoms, you would only get tips on how to operate paraplegic bathrooms and support groups for caretakers. You try going to a support group with victims of the illness, but find them to be in a vastly more difficult position than you. Yet you still suffer. Its a feeling of loneliness that is really hard to express.