4 ms·

I'm sorry but that does sound like the definition of an edge case to me. You have a rare situation that requires a unique solution.

superhuzza 9y ago
I bet that health outcomes are improved with longer term patient-physician relationships - Imagine having a new family doctor every year vs. a doctor who has known you for the last 15 years. edit: This (quite extensive and longitudinal) study would suggest that it's true. Check out the sources on the paper for other studies with similar findings: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4226774/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4226774/
- tonyedgecombe 9y ago
  I'd like to see some evidence on that because I can imagine staying with one doctor might result in some conditions not being diagnosed.
  - jen20 9y ago
    Indeed - I am familiar with people who were misdiagnosed by a GP (in England) for over a decade before a visit to a different doctor yielded the correct diagnosis and treatment.
  - superhuzza 9y ago
    Updated my post - The introduction provides a decent overview of other studies (and and their limitations) suggesting the same results.
BadCookie 9y ago
Each rare disease is rare, but it is not very rare to have a rare disease. There are just thousands of rare diseases. For example, it is estimated that 6-8% of the EU population has a rare disease: https://en.wikipedia.org/wiki/Rare_disease#Prevalence https://en.wikipedia.org/wiki/Rare_disease#Prevalence
- xiphias 9y ago
  Thanks, it's great to know (also that 80% has a genetic component). I have a rare disease (shortness of breath caused by air pollution, especially when lying down or excercising), but all pulmonology doctors are sure that I'm just depressed after the usual check-ups are unable to show the disease (and I'm not coughing which is unusual for most similar diseases). I'm trying to find blood tests and gene tests that help me find the disease I have, as I've given up on doctors. I also know multiple people with BRCA gene who weren't taken seriously by doctors before they had the gene test.
s73ver_ 9y ago
Wanting to continue to see a provider that you know and trust is an "edge case" now? We truly live in the darkest timeline.

superhuzza 9y ago

I bet that health outcomes are improved with longer term patient-physician relationships - Imagine having a new family doctor every year vs. a doctor who has known you for the last 15 years. edit: This (quite extensive and longitudinal) study would suggest that it's true. Check out the sources on the paper for other studies with similar findings: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4226774/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4226774/

tonyedgecombe 9y ago
I'd like to see some evidence on that because I can imagine staying with one doctor might result in some conditions not being diagnosed.
- jen20 9y ago
  Indeed - I am familiar with people who were misdiagnosed by a GP (in England) for over a decade before a visit to a different doctor yielded the correct diagnosis and treatment.
- superhuzza 9y ago
  Updated my post - The introduction provides a decent overview of other studies (and and their limitations) suggesting the same results.

BadCookie 9y ago

Each rare disease is rare, but it is not very rare to have a rare disease. There are just thousands of rare diseases. For example, it is estimated that 6-8% of the EU population has a rare disease: https://en.wikipedia.org/wiki/Rare_disease#Prevalence https://en.wikipedia.org/wiki/Rare_disease#Prevalence

xiphias 9y ago
Thanks, it's great to know (also that 80% has a genetic component). I have a rare disease (shortness of breath caused by air pollution, especially when lying down or excercising), but all pulmonology doctors are sure that I'm just depressed after the usual check-ups are unable to show the disease (and I'm not coughing which is unusual for most similar diseases). I'm trying to find blood tests and gene tests that help me find the disease I have, as I've given up on doctors. I also know multiple people with BRCA gene who weren't taken seriously by doctors before they had the gene test.

s73ver_ 9y ago

Wanting to continue to see a provider that you know and trust is an "edge case" now? We truly live in the darkest timeline.