27 ms·
I developed narcolepsy in my teens and I can absolutely relate to how you feel. Everyone just thought I was lazy, malingering or, in the case of my general phys
by toxic_ 9y ago
I developed narcolepsy in my teens and I can absolutely relate to how you feel. Everyone just thought I was lazy, malingering or, in the case of my general physician, depressed. It took years before I could even see a neurologist, after which an official diagnosis was quickly made.
If you're not already on sodium oxybate (Xyrem), I can't recommend it enough; it's the only thing that puts me in a sound, restorative sleep for more than a few hours.
I'm in the UK where prescriptions for Xyrem are almost impossible to obtain. Fortunately, the precursors for its active ingredient, GHB, are inexpensive and easy to acquire, so I just synthesize it myself. Technically it's illegal, but it would take an especially brave magistrate to convict me for having to overcome deficiencies in the NHS.
- theddman 9y agoWhat do you mean synthesize? If you're starting from GHB, then you just titrate up with NaOH to ~neutral?
- ComputerGuru 9y agoHe’s saying GHB is virtually synonymous with Xyrem and GHB isn’t hard to make.
- joveian 9y agoI'd suggest trying baclofen if you haven't. It doesn't work for everyone but it does work in some cases for both narcolepsy and circiadian issues and if it does work for you it is one of the better sleep drugs available (even if not usually considered as a sleep drug).