4 ms·

>But doctors mostly don't push for dietary and lifestyle changes. They are mostly in the business of selling pills and surgeries. really? my doctor pretty reg

by lsc 16y ago

>But doctors mostly don't push for dietary and lifestyle changes. They are mostly in the business of selling pills and surgeries. really? my doctor pretty regularly admonishes me to eat better and work out more. I think the problem is me... lifestyle changes are /hard/ I mean, maybe they need better tools for making those admonishments more effective, but they certainly recommend diet and lifestyle changes before breaking out the pills and scalpels.

Mz 16y ago
Not when you have something really deadly, like cystic fibrosis. Most people with CF are on several thousand dollars a month worth of "maintenance drugs" -- ie when they "aren't sick" -- and take more when they have an exacerbation. They account for something like half of all pediatric lung transplants and a third of all adult lung transplants (edit: Those are probably US specific figures). Meanwhile, I am dismissed as crazy for saying that diet and lifestyle can make a really big difference. The current state of the art advice for CF patients regarding diet is "high calorie, high fat, high salt". The medical establishment routinely pushes unhealthy foods at people with this condition because such foods have a high fat count and, therefore, a high calorie count. Healing my body has shrunk my appetite. I no longer need the extremely high calorie diet that is the norm for my condition. I get treated by the CF community like I made up my diagnosis and was never actually sick. The idea that you can have CF and get well is wholly alien and utterly rejected by most members of the CF community, as well as the medical establishment. Most research for treatment is for drug therapies, not diet and lifestyle. The idea is that since it is so deadly, the treatments need to be equally scary (much like chemo for cancer patients). I have found that is completely wrong and is, in fact, part of the problem.
- timtadh 16y ago
  My fiancée is a cystic fibrosis researcher in a lab challenging the recommended diet. I will pass your comment along to her!
  - Mz 16y ago
    If she is at all interested, you can give her the link to the website as well: http://healthgazelle.com/ http://healthgazelle.com/ Short version: Good quality sea salt makes a huge difference. Good quality fats make a huge difference. Addressing PH balance does miraculous things (people with CF tend to be way too acid and this likely is part of what causes the "normal progression of CF" because high acidity within cells causes proteins to miss-fold and a miss-folded protein is the crux of the matter in CF).
- pradocchia 16y ago
  Indeed. Diet and lifestyle are where the great revelations lie.

by lsc 16y ago

Mz 16y ago

Not when you have something really deadly, like cystic fibrosis. Most people with CF are on several thousand dollars a month worth of "maintenance drugs" -- ie when they "aren't sick" -- and take more when they have an exacerbation. They account for something like half of all pediatric lung transplants and a third of all adult lung transplants (edit: Those are probably US specific figures). Meanwhile, I am dismissed as crazy for saying that diet and lifestyle can make a really big difference. The current state of the art advice for CF patients regarding diet is "high calorie, high fat, high salt". The medical establishment routinely pushes unhealthy foods at people with this condition because such foods have a high fat count and, therefore, a high calorie count. Healing my body has shrunk my appetite. I no longer need the extremely high calorie diet that is the norm for my condition. I get treated by the CF community like I made up my diagnosis and was never actually sick. The idea that you can have CF and get well is wholly alien and utterly rejected by most members of the CF community, as well as the medical establishment. Most research for treatment is for drug therapies, not diet and lifestyle. The idea is that since it is so deadly, the treatments need to be equally scary (much like chemo for cancer patients). I have found that is completely wrong and is, in fact, part of the problem.

timtadh 16y ago
My fiancée is a cystic fibrosis researcher in a lab challenging the recommended diet. I will pass your comment along to her!
- Mz 16y ago
  If she is at all interested, you can give her the link to the website as well: http://healthgazelle.com/ http://healthgazelle.com/ Short version: Good quality sea salt makes a huge difference. Good quality fats make a huge difference. Addressing PH balance does miraculous things (people with CF tend to be way too acid and this likely is part of what causes the "normal progression of CF" because high acidity within cells causes proteins to miss-fold and a miss-folded protein is the crux of the matter in CF).
pradocchia 16y ago
Indeed. Diet and lifestyle are where the great revelations lie.