Just to maybe give you some additional orientation: my sister has "proper" coeliac's. It took years for it to be diagnosed, partly because doctors weren't cons

Just to maybe give you some additional orientation: my sister has "proper" coeliac's. It took years for it to be diagnosed, partly because doctors weren't considering for a while, but also because it can be elusive -- might it be possible that any tests doctors made on your SO were false negatives? It's not uncommon unfortunately. Also, a surprising number of things contain gluten unexpectedly. Some toothpastes for instance. Vinegars. Lemonades. So perhaps your SO's paradoxical outbreaks are compound effects of "hidden" gluten she has consumed over the day. There are also coeliac's sufferers who have a tolerance to low amounts of gluten in that they don't feel distress. They are threatened by the same health risks as those who feel pain though (such as increased cancer risk). Again, not armchair-doctoring here, I just want you to have extra information which might help you both understand this better.