4 ms·

Crohn's and IBD ; seeking designers and devs with personal interest in a solution

15 points by kamkafi 9y ago

Hi HN, I am a physician who developed a protocol for life-style based management of IBD/Crohns & looking for designers and devs with personal interested in this disease. Patients with this condition are severely underserved, Medical options suck and there are no good digital tools to help them manage. We developed a lifestyle focused program that allows patients to get off meds and actually improve, and have been working to build it into a platform. I am looking to find people with a personal interest in IBD/IBS so that we can build a product by people who are affected by it. Any help is appreciated. Thanks kkafimd@gmail.com

shimon 9y ago
Are you trying to build a company? There are many initiatives in this space. Not to say there isn't room for a new one, but you should have a theory of how you're different. I haven't studied the space in a while but http://www.improvecarenow.org/ http://www.improvecarenow.org/ (peds focused) seemed to be the most effective when I was looking ~4 years ago.
- kamkafi 9y ago
  Yes its to build a company/platform but with people who have IBS/IBD core to the team. What we do is pretty different than anything that exists. On our end, we did a clinical validation study for the approach and did a pretty in-depth market analysis to see whats out there. Although there are many initiatives, clinics etc there are only couple proper digital solution in this space (think along the lines of Omada) and no one trying to do what we are. Improvecarenow.org, for example, has a patient tool page with 6 different web-based toolkits. The difficulty I've run into is that its a hard disease and space to grasp for people not exposed to it, and the only people who understood and came on board were personally affected - hence reaching out here to see if I can find people with a personal interest in this
  - shimon 9y ago
    Thanks for the response and good luck. I can see why you'd want people with internal motivation, especially with a health intervention that isn't a drug or medical service. It's incredibly hard to capture value in health if you aren't selling a pill or working in a hospital. That's a major risk in making any such product viable. Try to address that even if you find people motivated enough to build this for free.
fosco 9y ago
I have UC that is mostly under control but have a relapse ever couple years, not a programmer but if you are looking for input maybe I can assist. Thanks!
- kamkafi 9y ago
  Always looking for input from anyone who has dealt with this condition and the medical system. pls send me a email @kkadimd gmail so I can reach out
Mz 9y ago
You are welcome to join Health Techies: https://groups.google.com/forum/?nomobile=true#!forum/health-techies https://groups.google.com/forum/?nomobile=true#!forum/health... I have a different diagnosis with significant gut involvement. I have privately pursued a diet and lifestyle approach to get better. I joined HN with fantasies of learning to code to develop a tech platform for more effectively conveying the info. I would love to hear what your general concept is for this project and I wish you the best of luck.
oblib 9y ago
I was just reading this today: "Investigators reported that smoking weed caused a “complete remission” of Crohn’s Disease in five of the 11 subjects. Another five of the eleven test subjects saw their Crohn’s Disease symptoms cut in half. Furthermore, “subjects receiving cannabis reported improved appetite and sleep, with no significant side effects.” http://bloomsmag.com/smoking-marijuana-causes-complete-remission-of-crohns-disease-no-side-effects-new-study-shows/ http://bloomsmag.com/smoking-marijuana-causes-complete-remis...
- kamkafi 9y ago
  Its a inflammatory condition and cannabis amongst other things has a calming effect (mentally and on the immune system)

15 points by kamkafi 9y ago

shimon 9y ago

Are you trying to build a company? There are many initiatives in this space. Not to say there isn't room for a new one, but you should have a theory of how you're different. I haven't studied the space in a while but http://www.improvecarenow.org/ http://www.improvecarenow.org/ (peds focused) seemed to be the most effective when I was looking ~4 years ago.

kamkafi 9y ago
Yes its to build a company/platform but with people who have IBS/IBD core to the team. What we do is pretty different than anything that exists. On our end, we did a clinical validation study for the approach and did a pretty in-depth market analysis to see whats out there. Although there are many initiatives, clinics etc there are only couple proper digital solution in this space (think along the lines of Omada) and no one trying to do what we are. Improvecarenow.org, for example, has a patient tool page with 6 different web-based toolkits. The difficulty I've run into is that its a hard disease and space to grasp for people not exposed to it, and the only people who understood and came on board were personally affected - hence reaching out here to see if I can find people with a personal interest in this
- shimon 9y ago
  Thanks for the response and good luck. I can see why you'd want people with internal motivation, especially with a health intervention that isn't a drug or medical service. It's incredibly hard to capture value in health if you aren't selling a pill or working in a hospital. That's a major risk in making any such product viable. Try to address that even if you find people motivated enough to build this for free.

fosco 9y ago

I have UC that is mostly under control but have a relapse ever couple years, not a programmer but if you are looking for input maybe I can assist. Thanks!

kamkafi 9y ago
Always looking for input from anyone who has dealt with this condition and the medical system. pls send me a email @kkadimd gmail so I can reach out

Mz 9y ago

You are welcome to join Health Techies: https://groups.google.com/forum/?nomobile=true#!forum/health-techies https://groups.google.com/forum/?nomobile=true#!forum/health... I have a different diagnosis with significant gut involvement. I have privately pursued a diet and lifestyle approach to get better. I joined HN with fantasies of learning to code to develop a tech platform for more effectively conveying the info. I would love to hear what your general concept is for this project and I wish you the best of luck.

oblib 9y ago

I was just reading this today: "Investigators reported that smoking weed caused a “complete remission” of Crohn’s Disease in five of the 11 subjects. Another five of the eleven test subjects saw their Crohn’s Disease symptoms cut in half. Furthermore, “subjects receiving cannabis reported improved appetite and sleep, with no significant side effects.” http://bloomsmag.com/smoking-marijuana-causes-complete-remission-of-crohns-disease-no-side-effects-new-study-shows/ http://bloomsmag.com/smoking-marijuana-causes-complete-remis...

kamkafi 9y ago
Its a inflammatory condition and cannabis amongst other things has a calming effect (mentally and on the immune system)