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The author did a good job of laying out the complexities of end of life care decisions. She did talk about how important it is to have these discussions in adva
by drunkpotato 16y ago
The author did a good job of laying out the complexities of end of life care decisions. She did talk about how important it is to have these discussions in advance, but I don't think she emphasized enough how important it is to have the whole family involved in discussions.
A child who has discussed these issues with her parents, and makes the right decisions in accordance with her parents' wishes, still faces guilt and indecision when the end comes and it's time to let go. If you combine that with unsupportive and accusatory siblings, that guilt and second-guessing can continue for years after the parent dies.
It's important to make sure that all children are involved in the discussion, especially if they don't agree with each other and the parent, and are hostile to any decision to forego care. Communication is hard, and distances are long, and it's far too easy not to have these discussions with the dying relative far away. It takes effort and will to make these discussions happen, but they are necessary.
- dmor 16y agoI absolutely agree with this, it is really important to get the family to buy-in and support the decision of the dying loved one. I lost my mother-in-law earlier this year to leukemia, and ultimately she made the choice to forego care. My husband and his two siblings provided in-home hospice care for their mother, because she wouldn't even allow any nurses or doctors in her home. This was a huge commitment, in time and also emotionally, since we basically became nurses ourselves and had to learn to perform many procedures. If we hadn't be in complete agreement and totally aware of what we were signing up for, it could have created a family rift. Instead, it brought us closer together.