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^ Agreed with above -- when I've discussed this with my more privacy-minded friends they always raise a concern about their data getting into the hands of insur
by carbine 9y ago
^ Agreed with above -- when I've discussed this with my more privacy-minded friends they always raise a concern about their data getting into the hands of insurance companies down the road, and having their premiums affected. Data security would be something I'd think quite a bit about, but I like the sound of what you're offering.
- subcosmos 9y agoThese issues certainly keep me awake at night. I'm really glad that we have laws like GINA that protect us from having our medical insurance change due to genetic testing. I hope that congress preserves these protections, and further applies them to other forms of insurance (like life insurance). This nonprofit of mine was born out of a lifetime of dealing with a rather serious medical issue. With full genome sequencing, I was able to finally diagnose myself as having a rather severe mitochondrial disorder. I've been worried that knowledge of the mutation would affect my medical care, but I finally reminded myself that the mutation was already making me quite ill to begin with! The biochemical concerns are now much more worrisome than the hypothetical insurance or discrimination concerns. I've grown relieved in the realization that finally knowing whats up will likely do more good than bad.