5 ms·
I used 23andMe, and was a happy customer, but asked them to delete my data after -- I wasn't comfortable with them keeping that information (on a long enough ti
by Osmium 9y ago
I used 23andMe, and was a happy customer, but asked them to delete my data after -- I wasn't comfortable with them keeping that information (on a long enough timescale, everyone is hacked... or there may be regulatory issues with health insurance one day etc.)
I do wonder if they really deleted my data though?
Would pay 10x what 23andMe asks for a similar service if they gave you only an offline copy of your data, didn't store it on their servers, but also an offline app to analyze your results. There are some open source solutions[0] out there but they're not as user friendly yet.
[0] https://github.com/mentatpsi/OSGenome https://github.com/mentatpsi/OSGenome, https://www.snpedia.com https://www.snpedia.com
- zeep 9y agoWhat you need, is a home kit that allows you to do it all yourself (a dumb kit so that the data stay safe with you)
- Osmium 9y agoI don't know, lab tests in a hospital go off to be analyzed somewhere. I think there's a healthy middle ground between "do it all yourself" and "let's store the results on a server connected to the internet indefinitely." I agree that an affordable SNP chip you could use at home would be amazing though.
- jonknee 9y agoOr a kit that isn't attached to your real identity (fairly easy to do with 23andMe, they don't require ID verification).
- zeep 9y agoIf your family members attach theirs to their real identities, they might be able to figure out which one is yours.