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Private information about my mental health is much more personal and sensitive than the wear of my car's engine. Handling that data to an untrained student inte
by euyyn 9y ago
Private information about my mental health is much more personal and sensitive than the wear of my car's engine. Handling that data to an untrained student intent on publishing a paper can cause plenty of harm.
I agree, though, that this study could have been done more easily by accessing the patients' records post-facto. But it's not the IRB's fault that the experiment could have been designed better.
- aidenn0 9y agoYes, mental health information is personal and sensitive, but it looks like the IRB didn't even address patient privacy, it was instead something that came out of a later audit. [edit] Also it seems that post-facto experiments are being encouraged over controlled trials, which seems the opposite of what you want from an experimenters point of view.
- euyyn 9y agoMore privacy protections were enforced later according to the account, but the very first protection of them all is asking for consent to use the data. That's what I was getting to. Consent to use your responses to treat you is different from consent to use them for research.