I think the sentiments of Jerome Lejeune are insightful here. When he discovered the concept of genetic disease he eventually saw that the medical community was

I think the sentiments of Jerome Lejeune are insightful here. When he discovered the concept of genetic disease he eventually saw that the medical community was shifting away from figuring out healing therapies for these ailments and pivoted to a non-medical populational euthanasia approach. He's supposed to have journaled or something to his wife about how he felt like he lost his Nobel prize by chastizing some medical board or some committee or something about turning from a committee of health to one of death or something to that effect. It's interesting because if you essentially condemn a disease as non-treatable then you'll naturally not exert the resources to discover cures and the root cause will never be directly addressed.