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The particular fix done in this study prevents hypertrophic cardiomyopathy, a genetic disorder that I have. I cannot explain how weird it feels to read front p
by fbdhsfagdshafgh 9y ago
The particular fix done in this study prevents hypertrophic cardiomyopathy, a genetic disorder that I have.
I cannot explain how weird it feels to read front page headlines that scientists have "fixed" me, that its a huge breakthrough that scientists will be able to remove part of what makes me ME from future generations.
I'm all for it, of course. HCM, most frequently diagnosed in people by their sudden death, is bad. But at a personal level, this feels unnerving.
- angersock 9y agoNow imagine when we can "cure" things like autism, nonstandard genders, race, etc. A lot of tolerance is predicated on things being out of our hands, practically. That goes away if we can change them.
- 0xffff2 9y agoI can't claim to represent the last two, but I would gladly trade a great deal less tolerance of autistic people for no one to ever be born with autism ever again, even if I didn't personally benefit at all.