4 ms·

Sure sure. http://micheleincalifornia.blogspot.com/2017/07/im-not-doctor-and-i-dont-play-one-on-tv.html http://micheleincalifornia.blogspot.com/2017/07/im-not-

by Mz 9y ago

Sure sure. http://micheleincalifornia.blogspot.com/2017/07/im-not-doctor-and-i-dont-play-one-on-tv.html http://micheleincalifornia.blogspot.com/2017/07/im-not-docto... Equally sadly, a brand spanking new account (created minutes ago and this its first comment) with a doctor-y title gives you even less credibility than I have and looks like trolling. Just an FYI.

rubatuga 9y ago
I apologize for the way the parent comment replied to you. I do have some questions though. What is it about the therapy that is Frankenstein? Frankenstein implies the haphazard and artificial sewing of parts. However, every drug or treatment we use today is artificial, a.k.a. created by humans, and by reading the article, the development of the immunotherapy was far from haphazard. Furthermore, you mention elegance and a light touch. How can those terms be defined in a clinical setting? Is elegance defined only by your opinion? What is elegant to one may not be to another. Lastly, I would like to agree that if possible, a light touch is always valued over a heavy one if the outcomes are the same. But in this situation we are in today with cancer, there is no room for valuing such pleasantries when lives continue to be at stake. Most would want the survival of their loved ones if a heavier touch must be used. In fact, this immunotherapy is indeed the lighter touch compared to extensive chemotherapies.
- Mz 9y ago
  What is it about the therapy that is Frankenstein? The principle of BIG ZAP followed by pronouncement that IT LIVES! We like this kind of drama. It makes it easy to claim credit for the outcome. Subtler approaches get a whole lot more "correlation does not prove causation" type feedback. But it sort of overlooks the fact that the body is the battlefield and if you have a scorched earth policy towards the disease, the remaining shelled out husk may not support life. Lastly, I would like to agree that if possible, a light touch is always valued over a heavy one if the outcomes are the same. In my experience, the outcomes are not the same: A lighter touch gets superior results because it does not leave one with a shelled out husk that cannot support life. Without going on at length, the TLDR of what my mother did for my father was she focused on keeping him hydrated and adequately nourished. He lost a third of his body weight prior to finally being diagnosed with colon cancer. At a time during his treatment that most colon cancer patients are losing weight, he was gaining weight so rapidly that his doctor yelled at my mother to slow it down. My father had a longstanding heart condition and the doctor was concerned that the sudden weight gain would be too much strain for his heart. I have followed some similar principles in recovering from my incurable health issues. My condition involves significant gut impairment, so much so that CF medical teams routinely include a dietician. Yet, the last time I checked, the state of the art was to encourage CF patients to feast on junk food because CF patients are encouraged to eat a high fat, high salt, high calorie diet. I never counted calories. I did work on getting enough fats and salt, but a higher priority for me was to eat nutritionally dense foods and high quality foods. I did a fair amount of research (or took advice from other people who had done so) and I got very picky about the kind of salt and fats I would eat, as well as the kind of food. This has yielded good results and allowed me to get off a long list of drugs and other treatments. I am gradually getting my life back when the norm for CF patients is steady deterioration until they finally die, often at very young ages.
honestoHeminway 9y ago
In olden times it didnt matter what stance you had on sickness. So calling the village crook for tea, performing some rituals, having a good vibe - was like throwing a dice. It could go well. It could go wrong- nobody was responsible for anything. But today, if you believe in your feelings more then in evidence, and do a steve job on yourself or worser others, for example by spreading fear and missinformation - dont expect nice terms. Your blog cuts out exactly where it would have goten interesting, no details, just whispered warnings and no precision on what the medicine did wrong or your mother did right. You could have had valid points there. My grandmother survived bone cancer for more then ten years, by not blindly following the chemo treatment as specified by the doctor- which can kill people simply by exausting there body fat reserves (basically starvation). She gave herself breaks to recover and gained 10 (very painfull years). Its one case, the divergence from treatment is specific and it dosent divolve in doctor bashing, but a treatment warning. This is how its done. I always had luck and a good experience with the doctors i had contact so i might be biased. Comments like yours prevent some type of people from searching medical help, and turn towards quack sciences/shamans and cultist movements. And thats horrifying, because those people deserve a chance to live. I shall scream murder by missinformation at anyone who doesent deliver precise information. Your case study on the reopened stitches on the arm was good. Missing where the circumstances when it reopened, and how much longer the doctor should have waited. Also there is no specifics on what your mum did, that helped against colon cancer. All in all, im sorry to say, it reaks of fortress-think, the idea, that non-family members/outsiders are just careless and plotting to move against you. I would be happy to reread your blogpost, with more details added. Until then it just doesent seem to add to the conversation.
- deleted 9y ago
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- deleted 9y ago
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by Mz 9y ago

rubatuga 9y ago

I apologize for the way the parent comment replied to you. I do have some questions though. What is it about the therapy that is Frankenstein? Frankenstein implies the haphazard and artificial sewing of parts. However, every drug or treatment we use today is artificial, a.k.a. created by humans, and by reading the article, the development of the immunotherapy was far from haphazard. Furthermore, you mention elegance and a light touch. How can those terms be defined in a clinical setting? Is elegance defined only by your opinion? What is elegant to one may not be to another. Lastly, I would like to agree that if possible, a light touch is always valued over a heavy one if the outcomes are the same. But in this situation we are in today with cancer, there is no room for valuing such pleasantries when lives continue to be at stake. Most would want the survival of their loved ones if a heavier touch must be used. In fact, this immunotherapy is indeed the lighter touch compared to extensive chemotherapies.

Mz 9y ago
What is it about the therapy that is Frankenstein? The principle of BIG ZAP followed by pronouncement that IT LIVES! We like this kind of drama. It makes it easy to claim credit for the outcome. Subtler approaches get a whole lot more "correlation does not prove causation" type feedback. But it sort of overlooks the fact that the body is the battlefield and if you have a scorched earth policy towards the disease, the remaining shelled out husk may not support life. Lastly, I would like to agree that if possible, a light touch is always valued over a heavy one if the outcomes are the same. In my experience, the outcomes are not the same: A lighter touch gets superior results because it does not leave one with a shelled out husk that cannot support life. Without going on at length, the TLDR of what my mother did for my father was she focused on keeping him hydrated and adequately nourished. He lost a third of his body weight prior to finally being diagnosed with colon cancer. At a time during his treatment that most colon cancer patients are losing weight, he was gaining weight so rapidly that his doctor yelled at my mother to slow it down. My father had a longstanding heart condition and the doctor was concerned that the sudden weight gain would be too much strain for his heart. I have followed some similar principles in recovering from my incurable health issues. My condition involves significant gut impairment, so much so that CF medical teams routinely include a dietician. Yet, the last time I checked, the state of the art was to encourage CF patients to feast on junk food because CF patients are encouraged to eat a high fat, high salt, high calorie diet. I never counted calories. I did work on getting enough fats and salt, but a higher priority for me was to eat nutritionally dense foods and high quality foods. I did a fair amount of research (or took advice from other people who had done so) and I got very picky about the kind of salt and fats I would eat, as well as the kind of food. This has yielded good results and allowed me to get off a long list of drugs and other treatments. I am gradually getting my life back when the norm for CF patients is steady deterioration until they finally die, often at very young ages.

honestoHeminway 9y ago

In olden times it didnt matter what stance you had on sickness. So calling the village crook for tea, performing some rituals, having a good vibe - was like throwing a dice. It could go well. It could go wrong- nobody was responsible for anything. But today, if you believe in your feelings more then in evidence, and do a steve job on yourself or worser others, for example by spreading fear and missinformation - dont expect nice terms. Your blog cuts out exactly where it would have goten interesting, no details, just whispered warnings and no precision on what the medicine did wrong or your mother did right. You could have had valid points there. My grandmother survived bone cancer for more then ten years, by not blindly following the chemo treatment as specified by the doctor- which can kill people simply by exausting there body fat reserves (basically starvation). She gave herself breaks to recover and gained 10 (very painfull years). Its one case, the divergence from treatment is specific and it dosent divolve in doctor bashing, but a treatment warning. This is how its done. I always had luck and a good experience with the doctors i had contact so i might be biased. Comments like yours prevent some type of people from searching medical help, and turn towards quack sciences/shamans and cultist movements. And thats horrifying, because those people deserve a chance to live. I shall scream murder by missinformation at anyone who doesent deliver precise information. Your case study on the reopened stitches on the arm was good. Missing where the circumstances when it reopened, and how much longer the doctor should have waited. Also there is no specifics on what your mum did, that helped against colon cancer. All in all, im sorry to say, it reaks of fortress-think, the idea, that non-family members/outsiders are just careless and plotting to move against you. I would be happy to reread your blogpost, with more details added. Until then it just doesent seem to add to the conversation.

deleted 9y ago
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deleted 9y ago
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