Such information should be difficult to access due to the grave consequences of its misuse. And of course greedy insurance companies, advertisers and employers

Such information should be difficult to access due to the grave consequences of its misuse. And of course greedy insurance companies, advertisers and employers would be more than happy to misuse it, if it means making more money. Perhaps you'd like to have chat with the people on that ethics board, you might learn a thing or two. The medical science can move forward without disregarding people's rights.