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Here in Germany the Dexcom G4 system with Animas Vibe insulin pump became fully covered by the health insurance last November and a couple of weeks ago I got my

by pimeys 9y ago

Here in Germany the Dexcom G4 system with Animas Vibe insulin pump became fully covered by the health insurance last November and a couple of weeks ago I got my system working. It is a pretty amazing improvement to my life: both the pump and CGM. The G4 transmitter has a 2.4 GHz radio and I built an extra device with Wixel and Bluetooth to transfer the data so my Android phone so xDrip+ and my Android watch can display the glucose values real time. It works so great that my A1c levels been going down from over 7% to 5-6%. If you are in Europe and have a Type 1 Diabetes, you should ask your doctor about your options.

templaedhel 9y ago
If you have an insulin pump (best if it's an older one, since newer ones are harder to hack) you should look into OpenAPS (open artificial pancreas system) https://openaps.org/ https://openaps.org/. People have code/schematics available to build a closed loop system between CGM<>insulin pump which automatically adjusts the dosage based on glucose levels and keeps you in range better than even the best attempts at manual dosages. Seems like you've already done half the work, which is connecting the CGM to a device you can run custom code on. Medtronic just came out with their first closed loop system (https://www.medtronicdiabetes.com/products/minimed-670g-insulin-pump-system https://www.medtronicdiabetes.com/products/minimed-670g-insu...), but OpenAPS has been around for years, and not sure how Medtronic will go about getting the 670 approved in Germany.
- pimeys 9y ago
  The Medtronic 670g was my other option, but I took the Animas Vibe + Dexcom G4 just because it's easier to hack, lots of German Diabetes hackers use it, its CGM seems to be more accurate and you can use the G4 sensors way longer than the 670g. 670g is a closed loop system, but what it does is it stops giving you the basal insulin when it thinks you are getting a hypoglycemia soon. What it doesn't do is to give you correct amount of insulin automatically when you've been eating carbs or doing exercise to keep your glucose level in the 5.5 mmol/l target. And with the new Fiasp insulin automatic adjustments would be possible. To be able to build the OpenAPS, you must have an older Medtronic pump which are not covered by German insurance anymore. My Animas doesn't allow to tweak the insulins remotely.
  - cperciva 9y ago
    The 670G completely controls basal rates; the "suspend on low" functionality arrived in a previous generation. But it won't keep your blood glucose at 5.5 mM -- it targets 6.7 mM, and there doesn't seem to be any way to change this. :-/
    - pimeys 9y ago
      Sounds nice. I still think I'm going to manage my insulins manually until the next generation of artificial pancreas. This system what I have is already the biggest ever improvement for my diabetes I've ever had.
- dingo_bat 9y ago
  Isn't it a bit scary to run the auto-insulin code on an android phone?
  - wapz 9y ago
    I do not have an insulin pump and I'm presuming you don't with my response. The pumps I have seen make noise when they are pumping and also have an alarm (I'm not sure if that's from the pump or the reader) if your levels are on either extreme. I'm guessing malfunctioning code would only execute once by pumping too much or not pumping at all and the user would figure it out very quickly.
    - quickben 9y ago
      I'd argue the users can't identify anything if they are rendered unconscious: https://en.wikipedia.org/wiki/Diabetic_coma https://en.wikipedia.org/wiki/Diabetic_coma You definitely don't want anything buggy with medical devices.
      - wapz 9y ago
        I agree about the importance of medical devices but I don't think diabetic coma happens as easily as you think for most (if they are on one of those full-systems). From what I've seen from insulin pumps/systems: 1. There is a max rate that it can pump 2. There are alarms that go off if the numbers are above or below your settings (I believe there are also max and mins for those so you can't accidentally set it to a 'fatal' number) 3. The systems seemed 'independent.' The reader did not take for granted that the pump was pumping, but rather continually monitored glucose levels and would still set off an alarm if the numbers weren't within the bounds.
richie5um 9y ago
Unfortunately I can't get this in the UK. I asked, but they only give out to kids or people who poorly manage their T1. :(
- spullara 9y ago
  Can you pay for it yourself with their discount?
- ollysb 9y ago
  There's https://www.freestylelibre.co.uk/libre/ https://www.freestylelibre.co.uk/libre/ which I believe you can just order online (I'm considering one myself). You have to scan the sensor yourself(it stores the data between scans) so it doesn't trigger alarms like the dexcom but for gathering data about how exercise/diet effects your levels it should do the job nicely I think. edit: The starter pack costs £159.95, see https://www.freestylelibre.co.uk/libre/products/starter-pack.html https://www.freestylelibre.co.uk/libre/products/starter-pack...
  - thesehands 9y ago
    The sensors are quite pricey to get, each lasting roughly 2 weeks. Unfortunately the sensors aren't available on prescription yet. Let's hope this changes.
  - cyunem 9y ago
    These were recently included in the coverage given by the danish government (at least in my area) and this is probably the biggest quality of life improvement I have received in at least 10 years of diabetes. Even though it's not as clever as some of the other systems, being able to get an idea of the level without having to find a secluded spot and prick my finger is a really great feeling. It also means I can actually check my levels while at a party for example, where previously I would put it off for a bit because it was inconvenient.
  - pimeys 9y ago
    German insurance companies cover these too and I had them about six months before switching to Dexcom system. The NFC scanner provided is not accurate at all. The values are what they are and you can't calibrate them. Luckily if you own an Android phone with NFC reader you can use xDrip+ to scan the values and xDrip+ allows calibrations, so the measurements reflect your blood sugar much more accurately. I'm having trouble with not feeling hypoglycemias and I'm having them quite often at night. Freestyle Libre by default doesn't automatically measure your glucose levels, but there is a hack with Sony Smartwatch 3, a strap and very custom and hacky android version which enables the NFC reader in Sony and you can get alarms to your phone on low glucose levels. It worked and saved me a couple of nights, but the Libre chips break easily and the system was kind of a drag to use in the end.
ferongr 9y ago
Europe is not a country. I'd wager less prosperous countries do not cover such devices.

by pimeys 9y ago

templaedhel 9y ago

If you have an insulin pump (best if it's an older one, since newer ones are harder to hack) you should look into OpenAPS (open artificial pancreas system) https://openaps.org/ https://openaps.org/. People have code/schematics available to build a closed loop system between CGM<>insulin pump which automatically adjusts the dosage based on glucose levels and keeps you in range better than even the best attempts at manual dosages. Seems like you've already done half the work, which is connecting the CGM to a device you can run custom code on. Medtronic just came out with their first closed loop system (https://www.medtronicdiabetes.com/products/minimed-670g-insulin-pump-system https://www.medtronicdiabetes.com/products/minimed-670g-insu...), but OpenAPS has been around for years, and not sure how Medtronic will go about getting the 670 approved in Germany.

pimeys 9y ago
The Medtronic 670g was my other option, but I took the Animas Vibe + Dexcom G4 just because it's easier to hack, lots of German Diabetes hackers use it, its CGM seems to be more accurate and you can use the G4 sensors way longer than the 670g. 670g is a closed loop system, but what it does is it stops giving you the basal insulin when it thinks you are getting a hypoglycemia soon. What it doesn't do is to give you correct amount of insulin automatically when you've been eating carbs or doing exercise to keep your glucose level in the 5.5 mmol/l target. And with the new Fiasp insulin automatic adjustments would be possible. To be able to build the OpenAPS, you must have an older Medtronic pump which are not covered by German insurance anymore. My Animas doesn't allow to tweak the insulins remotely.
- cperciva 9y ago
  The 670G completely controls basal rates; the "suspend on low" functionality arrived in a previous generation. But it won't keep your blood glucose at 5.5 mM -- it targets 6.7 mM, and there doesn't seem to be any way to change this. :-/
  - pimeys 9y ago
    Sounds nice. I still think I'm going to manage my insulins manually until the next generation of artificial pancreas. This system what I have is already the biggest ever improvement for my diabetes I've ever had.
dingo_bat 9y ago
Isn't it a bit scary to run the auto-insulin code on an android phone?
- wapz 9y ago
  I do not have an insulin pump and I'm presuming you don't with my response. The pumps I have seen make noise when they are pumping and also have an alarm (I'm not sure if that's from the pump or the reader) if your levels are on either extreme. I'm guessing malfunctioning code would only execute once by pumping too much or not pumping at all and the user would figure it out very quickly.
  - quickben 9y ago
    I'd argue the users can't identify anything if they are rendered unconscious: https://en.wikipedia.org/wiki/Diabetic_coma https://en.wikipedia.org/wiki/Diabetic_coma You definitely don't want anything buggy with medical devices.
    - wapz 9y ago
      I agree about the importance of medical devices but I don't think diabetic coma happens as easily as you think for most (if they are on one of those full-systems). From what I've seen from insulin pumps/systems: 1. There is a max rate that it can pump 2. There are alarms that go off if the numbers are above or below your settings (I believe there are also max and mins for those so you can't accidentally set it to a 'fatal' number) 3. The systems seemed 'independent.' The reader did not take for granted that the pump was pumping, but rather continually monitored glucose levels and would still set off an alarm if the numbers weren't within the bounds.

richie5um 9y ago

Unfortunately I can't get this in the UK. I asked, but they only give out to kids or people who poorly manage their T1. :(

spullara 9y ago
Can you pay for it yourself with their discount?
ollysb 9y ago
There's https://www.freestylelibre.co.uk/libre/ https://www.freestylelibre.co.uk/libre/ which I believe you can just order online (I'm considering one myself). You have to scan the sensor yourself(it stores the data between scans) so it doesn't trigger alarms like the dexcom but for gathering data about how exercise/diet effects your levels it should do the job nicely I think. edit: The starter pack costs £159.95, see https://www.freestylelibre.co.uk/libre/products/starter-pack.html https://www.freestylelibre.co.uk/libre/products/starter-pack...
- thesehands 9y ago
  The sensors are quite pricey to get, each lasting roughly 2 weeks. Unfortunately the sensors aren't available on prescription yet. Let's hope this changes.
- cyunem 9y ago
  These were recently included in the coverage given by the danish government (at least in my area) and this is probably the biggest quality of life improvement I have received in at least 10 years of diabetes. Even though it's not as clever as some of the other systems, being able to get an idea of the level without having to find a secluded spot and prick my finger is a really great feeling. It also means I can actually check my levels while at a party for example, where previously I would put it off for a bit because it was inconvenient.
- pimeys 9y ago
  German insurance companies cover these too and I had them about six months before switching to Dexcom system. The NFC scanner provided is not accurate at all. The values are what they are and you can't calibrate them. Luckily if you own an Android phone with NFC reader you can use xDrip+ to scan the values and xDrip+ allows calibrations, so the measurements reflect your blood sugar much more accurately. I'm having trouble with not feeling hypoglycemias and I'm having them quite often at night. Freestyle Libre by default doesn't automatically measure your glucose levels, but there is a hack with Sony Smartwatch 3, a strap and very custom and hacky android version which enables the NFC reader in Sony and you can get alarms to your phone on low glucose levels. It worked and saved me a couple of nights, but the Libre chips break easily and the system was kind of a drag to use in the end.

ferongr 9y ago

Europe is not a country. I'd wager less prosperous countries do not cover such devices.