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Also possible that we judge each other because medical privacy gives us a false impression of the world. Or because privacy allows people living in glass houses
by awinter-py 10y ago
Also possible that we judge each other because medical privacy gives us a false impression of the world. Or because privacy allows people living in glass houses to throw stones.
Either way -- if opening medical records leads to new treatments, it may be worth the shame.
- pavel_lishin 10y ago> Either way -- if opening medical records leads to new treatments, it may be worth the shame. That's incredibly easy to say if you don't have any of the problems listed.
- awinter-py 10y agoI have seasonal allergies and @codemac for some reason listed allergies (maybe b/c it's a preexisting condition and that's in the news?). But point taken.
- pavel_lishin 10y agoThere is nothing shameful about seasonal allergies.
- awinter-py 10y agoI think AIDS is the trickiest one. It's not genetic (except for the very few people who are congenitally immune). It can kill you if you don't live in a rich country. Many people who have it are gay, which is illegal in a lot of places. (Even in the US C&BP keeps messing with that canadian guy for having grindr on his phone). STDs in general can reveal you've been cheating on / lying to a partner. If you asked me 'should we publicize AIDS status in a lightly anonymized form', I say no, of course not. But if you ask me 'do we want public records about AIDS treatments', absolutely. (AIDS may be a moot point because there's recent CRISPR research about 'excising' AIDS infection in live mice). My point: I'd like to have both things but to solve problems at a continent-scale we need transparency about disease and treatment.