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I am a former homemaker. Given how far I have gotten by following the principle of treat the underlying cause of the pain, presumably actual doctors and scienti
by Mz 10y ago
I am a former homemaker. Given how far I have gotten by following the principle of treat the underlying cause of the pain, presumably actual doctors and scientists could get a great deal further if that principle was a driving force in their work. Instead, they tend to say shitty things to people like me, such as "People like you don't get well. Symptom management is the name of the game."
Yeah, dude, if you make zero effort to get me well because you are psychologically comfortable with writing me off for dead already, it should come as no surprise when the lack of effort leads to a lack of improvement.
- maxerickson 10y agoPlease don't email me about this comment, but have you given much consideration to the possibility that your particular form of the disorder you have happens to be unusually mild?
- Mz 10y agoYeah, that totally explains why I am no longer in constant, excruciating pain and completely justifies the idea of not bothering to try to treat the underlying cause for serious disorders not currently understood. Let's go with that. /s
- maxerickson 10y agoNot the point I was making.
- Mz 10y agoWell, the only point I am trying to make is that treating the underlying cause of pain is better than just taking pain killers. If you aren't trying to refute that, what on earth is your point?
- maxerickson 10y agoYou constantly speak to the potential value of your experience and how doctors ignore it. If you have a particularly mild mutation, it's hard to extrapolate from what you do to deal with it to benefits for people with mutations that manifest more severely.
- Mz 10y agoI speak from experience. Why that is such a problem for me to do is a thing I cannot fathom. Other members of this same forum routinely speak from experience as well without that being a problem. Yes, I have a mild form. But I nonetheless have gotten off many drugs and grown healthier when that is supposedly not possible. So has my son with the same diagnosis. And I have known people with more severe forms who benefited from what I know. So I have good reason to believe that it generalizes. But when I began to get better, my physician expressed no curiosity and simply scheduled me fewer appointments. So, that leaves me with sounding like a quack in online forums while trying hard to tread lightly so as to not wind up like Semmelweis https://en.m.wikipedia.org/wiki/Ignaz_Semmelweis https://en.m.wikipedia.org/wiki/Ignaz_Semmelweis I say again: If you do not disagree with my point that addressing underlying causes is better than pain killers, why on earth do you need to try to dismiss the personal experiences that created that opinion? What does it matter if my deadly condition kills more slowly than average for my deadly condition?
- maxerickson 10y agoI have not dismissed your experience. I asked you a question about how you reflect on it.
- zero_intp 10y agoThis is a great question, as it is the root of CBT (cognitive behavioral therapy). CBT has been proven to improve some chronic pain situations.
- Mz 10y agoYou removed the word obnoxious from the comment where you asked me to please not email you. I think you know full well you are being dismissive and, to add insult to injury, framing it as me being neurotic. I post comments and articles about a great many things. I write blog posts about a great many things. Most of it gets essentially ignored. My comments on certain subjects get big (often negative) reactions, and not because I am trying to jerk anyone's chain. If I had the power to engineer social outcomes to that degree, I would use it to put money in my pocket and stop being so poor.
- deleted 10y ago[deleted]