hire a part-time personal assistance and make it their job to get you medical appointments. Too late to edit my own post, but I have since found that there are

hire a part-time personal assistance and make it their job to get you medical appointments. Too late to edit my own post, but I have since found that there are actually professional medical advocates - a random example I found by looking for somebody in Ohio is this guy: http://www.thefamilyadvocate.com/what.html http://www.thefamilyadvocate.com/what.html (just to give you the idea) Sure they seem to specialise in hospitalised people, but that seems to be because they are the very ill ones. I think the OP qualifies. Perhaps it would be possible to hire such a person to navigate the maze of getting to the right specialist, or how to obtain the most appropriate referrals - or any of these mundane matters that are so hard to tackle when one is simply exhausted.