It occurs to me that were I in your situation, I would not have a very good idea about what to do with all the suggestions here on HN and on the blog. Perhaps y

It occurs to me that were I in your situation, I would not have a very good idea about what to do with all the suggestions here on HN and on the blog. Perhaps you already have thought this through, but for me it would not be an insignificant problem. It might rather be the kind of problem that crowdsourcing would be more suited to help with than the problem you first came here with; i.e., you might want to now ask HN, how do I strategize from here. One of the problems you seem to have had is finding the right kind of doctor. A specialist in a given field is only useful if you happen to have an illness in that field. A generalist is unlikely to be able to identify a rare disease. How do you go about solving that problem. I don't know the answer, but perhaps someone here does. And perhaps someone here can tell you how to approach doctors with a strategy most likely to get them committed to solving the problem. My gut feeling, in any case, is that you ignore alternative medicine/radical lifestyle change suggestions. I would guess (and the fact that I must guess is probably telling) that alternative medicine is no more successful in scenarios where traditional medicine fails than in those where it succeeds. I wish you the best.