I would embrace big-data epidemiological studies (in the U.S.) if society would legally and practically-irreversibly guarantee me that the results would not be

I would embrace big-data epidemiological studies (in the U.S.) if society would legally and practically-irreversibly guarantee me that the results would not be used to discriminate, against me nor against others. In health care insurance and health care delivery. In employment. Etc. As it is, I fear any and every bit of data I provide the system may well be used against me at a future point. Right now, I'm going through some extensive testing, and I've decided to provide further historical data in my possession for the sake of a better analysis and diagnosis. However, that same data -- or rather, one datum of the data it is comprised of -- a few decades ago, was used as the basis to deny my application to purchase individual health care insurance. With the ongoing attacks on the Affordable Care Act, I have the distinct feeling of traveling back in time. If we are going to have cooperative buy-in on big data, we are going to need to ensure that the resulting benefits are shared across the population and are not used to discriminate against subjects having data "on the left side of the bell curve".