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> Again take a look at CMS Qualified Entity program which provides identifiable data From what I understand, this program has exactly the sort of contractual l

> Again take a look at CMS Qualified Entity program which provides identifiable data From what I understand, this program has exactly the sort of contractual legal limits on use that the authors are asking for: "Qualified entities may use the information obtained under section 1874(e) of the Act for the sole purpose of evaluating the performance of providers of services and suppliers, and to generate specified public reports". > but completely dismissing existing standards to paint a picture of doom and gloom is ridiculous The authors don't dismiss existing standards, but rather explain how the DeepMind agreement was particularly troubling in light of standard data sharing agreements. And in any case, two wrongs don't make a right. If NHS hands health data over to private companies, there should be very strong legal protections governing the use of that data. PR statements and unenforceable promises are not enough. To the extent that it is common for private companies to get access to identifiable health information without agreeing to strong legal protections, the authors of this paper are completely validated re: their doom and gloom tone. And to the extent that this is not the case, the DeepMind agreement was exceptional and particularly troubling. In either case, you're just strengthening the paper's thesis.

killjoywashere 10y ago
> If NHS hands health data over to private companies, there should be very strong legal protections governing the use of that data. NHS hands health data over to lots of private companies. Like any corporate entity, NHS would be expected to perform better when it outsources non-core work. The core work of the hospitals is patient care. The core work of the health care system is coordination, neither of which sounds like "algorithm development". Keep in mind there is a vast standing body of law and precedent around these issues in the US, Britain, and anywhere else that medical research is undertaken.

killjoywashere 10y ago

> If NHS hands health data over to private companies, there should be very strong legal protections governing the use of that data. NHS hands health data over to lots of private companies. Like any corporate entity, NHS would be expected to perform better when it outsources non-core work. The core work of the hospitals is patient care. The core work of the health care system is coordination, neither of which sounds like "algorithm development". Keep in mind there is a vast standing body of law and precedent around these issues in the US, Britain, and anywhere else that medical research is undertaken.