3 ms·
After nearly 4 years of my battle with Lyme, I finally found a doctor who cured me with an essentially illegal combination of antibiotics (4x the max daily dosa
by aerosmile 10y ago
After nearly 4 years of my battle with Lyme, I finally found a doctor who cured me with an essentially illegal combination of antibiotics (4x the max daily dosage of doxycycline for 18 months). In her words, this will be bad, but not nearly as bad as not treating your Lyme. I haven't had any symptoms for 3 years now and am in best health I've ever been.
Occasionally, however, I am still reminded of how ignorant our medical institutions are about this disease. Recently I switched to Kaiser and during my intake process I mentioned my chronic Lyme, at which point the MD corrected me that there's no such a thing. He explained to me that he has all those years of experience, and that he has had to correct so many people about their misconceptions about Lyme. According to him, Lyme is like fever that you treat once at a time (and no longer than 4 weeks max). After my push back, he called in their in infectious disease specialist, who repeated the same thing, word by word. They even wanted to know the name of my specialist, claiming that it was irresponsible of her to give me that treatment (I didn't share her info).
I don't doubt that these two gentlemen are doing their best to help out their patients. I also realize that some kid in their practice will unlikely be able to shatter their firm beliefs that they had acquired in their decade-long training at prestigious universities. It just makes me sad that hundreds of other kids will be less lucky than I was, and will be left alone trying to figure out what's wrong with them, because obviously it can't be Lyme.
In words of my angel doctor, Lyme is the worst curable disease out there - it's a shame we don't cure more people.
- jbob2000 10y agoDo you think the antibiotics were just a placebo for you? Maybe the pain you went through while taking the drugs knocked the disease "out of your head", so-to-speak.
- aerosmile 10y agoThe symptoms of Lyme are very real and in my case had physical manifestations on my skin. I highly doubt that "more positive thinking" fixes that kind of stuff. Edit: just to be clear - the main issues were "under the skin," and very much in line with what's described in the article.
- jbob2000 10y agoYou've never heard of stress rashes? I have a friend who gets them all the time. She gets them after a few weeks of stress, like studying for an exam. I don't want to diminish your suffering, just that there are other explanations for it. The mind is powerful thing!
- aerosmile 10y agoI should have made it clear that there's never been any doubt about the initial infection. I had the bull's eye and was diagnosed correctly. The point I am making is about what happens once you finish your initial 10-30 day treatment and the symptoms continue to persist.