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I have migraines and epilepsy. > I collapse under the side effects of my medication; my mom tolerates hers with grace and determination. My body just will not
by soulnothing 10y ago
I have migraines and epilepsy.
> I collapse under the side effects of my medication; my mom tolerates hers with grace and determination.
My body just will not tolerate medication. I'm not on any medication right now. But it was pretty much a guarentee I would get 90% of the side effects. My mom is the same way. In addition my liver is so thoroughly trashed from anti convulstants, that I need double of anything for it to have an effect.
This whole article really hits home except for:
> TO THIS DAY, I GUARD A HIDDEN HOPE that I will receive a new diagnosis, one that clearly explains the severity of my symptoms.
I'm done trying, done with doctors visits new medications. I've been in hospitals since I was 2, it's time too enjoy life as much as I can and push forward. The bigger problem has been my friends, they constantly badger me to go get help.
There is one downside to this. I went to the ER a few weeks back. I have a rare migraine disorder (Hemiplegic [mimics a stroke]). The doctors said I was a hypocondriac, who was making up a migraine condition, and placed me under psych evaluation. Because I didn't have a history. Which was because all the medications made it worse.
> Chronic migraine creates all sorts of discomfort and anguish, but what has been hardest to bear is not knowing what this means for my future. I don’t know how debilitated I’ll be or who will take care of me or what I’ll do about money.
We are given a set hand when we start life. You'll discard some, pick some up. But there are some cards you're stuck with. If you have something chronic, you may not be able to resolve it. If you do great, fantastic. Find small little tricks to get you by, and work with it.
Make the best of each day, do everything you can. Don't let it hold you back. I've found the hardest part is not on me. I feel practically discouraged, when I get a spike of pain, or become paralyzed. People rush me, because they care. But just let me be. Constantly being coddled makes me almost regret trying certain things. I feel really lucky now, to have a group of friends who are like.
"Him yeah he's fine just seizing. He'll come too in about ten mintues."
We have so much to learn about neurology. I've bounced around diagnoses. The resolutions have been largely outside of western medicine. The biggest change came about five years ago. An acupuncturist had me take a genetic food allergy test . I had to pay out of pocket. But after cleaning up my diet, my migraines were cut in half. I get a cock eyed look from doctors, when I say my treatment is this natural thing, or dietary.
- Sevrene 10y ago> after cleaning up my diet, my migraines were cut in half. I get a cock eyed look from doctors, when I say my treatment is this natural thing, or dietary. If your 'natural' treatment is just dietary change, that is actually a very valid way to reduce migraines. Your doctor should know that. Some chemicals in foods are known and some others just suspected to trigger migraines, for instance Tyramine is highly suspected of triggering migraines. For me alcohol has a huge impact on the severity of migraines or just triggering them all together. I've eliminated alcohol completely because of it.