4 ms·
The U.S. society goes further, discouraging patients from getting tested or seeking surgical treatment. Rather, it continues to promote drug treatments used to
by memetichazard 17y ago
The U.S. society goes further, discouraging patients from getting tested or seeking surgical treatment. Rather, it continues to promote drug treatments used to alleviate symptoms, which include corticosteroids, chemotherapy agents and pain medication.
I can see not seeking surgical treatment, but getting tested does no harm, helps investigate this avenue of treatment, and gives the patient more information. And recommending pharmaceuticals... well, I've got a knee-jerk reaction to that.
- tomjen3 17y agoI can't help but think that some of those organizations don't want these people to get this treatment, because if MS is a solved problem there will no longer be any need for these societies. It may sound paranoid, but the same think happened to Mothers against drunk drivers. They so alienated the founder that she is (or at least was) a lobbyist for a alcohol company. It is very sad.
- jerf 17y ago"The goal of any organization eventually becomes to perpetuate itself." (Not a direct quote, but the observation does not come from me. It's in that class of observations so cynical that they can't help but be true... and are. Note the "eventually", it's an important word. A few organizations have managed to avoid that fate for a long time, most succumb within a mere fifty or hundred man-years.)
- tomjen3 17y agoThank you, that was the sentiment I was trying to find. It is also worth to point out that it almost never happens with the founder or even the original group that starts it. It almost always happens when the group get filled with holy warriors who go far beyond the original mission or when it gets filled with a bunch of rent-seekers.