I'd have to look, but most of them started developing symptoms in their 60s and it had progressed to needing full-time care by their 70s, so not super-early ons

I'd have to look, but most of them started developing symptoms in their 60s and it had progressed to needing full-time care by their 70s, so not super-early onset but early enough to be pretty devastating. I hadn't thought about participating in a study, but that sounds interesting. I'll have to look into it.